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101: Tiffany’s Story | T18/Edward Syndrome + Advocating for Her Daughter’s Right to Live

101: Tiffany’s Story | T18/Edward Syndrome + Advocating for Her Daughter’s Right to Live

FromThe Rare Life


101: Tiffany’s Story | T18/Edward Syndrome + Advocating for Her Daughter’s Right to Live

FromThe Rare Life

ratings:
Length:
57 minutes
Released:
Sep 29, 2022
Format:
Podcast episode

Description

When Tiffany was told her unborn daughter was “incompatible with life” because of her trisomy 18 diagnosis, she was immediately pressured to terminate. After deciding to continue her pregnancy, Aiyana was born alive—beating the odds. And because of the T18 diagnosis, doctors refused to give her the life-saving procedures she needed. Tiffany then changed her care, in favor of a doctor who agreed to give her the procedure and save her life.
In this episode, Tiffany tells what its been like to have to fight for her daughter to receive needed medical care. She also shares what it was like to go through a divorce in the weeks leading up to and following Aiyana’s chaotic birth, and ways she has learned to surrender the illusion of control.
Links:
Functional Formularies (our awesome sponsor!):
Follow this link to check out Functional Formularies’ products and to receive 10% off your purchase. (Use code “rare10” if there are issues with the discount being applied)
Use this link for your clinician to request a free sample of Functional Formularies.
Follow Functional Formularieson Instagram and join the giveaway!
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Read about the Boston Children’s study about blenderized diets.
Follow Tiffany on Instagram.
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Check out adorable photos of Tiffany + fam on the website.
Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Donate to the podcast via Buy Me a Coffee.
Check out our affiliate BetterHelp for online licensed therapy.
Released:
Sep 29, 2022
Format:
Podcast episode

Titles in the series (100)

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.