31 min listen
86: Karley’s Story | Two Rare Syndromes, Playing the What-If Game, and Appointments on The Daily
FromThe Rare Life
86: Karley’s Story | Two Rare Syndromes, Playing the What-If Game, and Appointments on The Daily
FromThe Rare Life
ratings:
Length:
36 minutes
Released:
Apr 14, 2022
Format:
Podcast episode
Description
With more than 20 therapists and doctors for her two daughters, Karley spends almost every day at appointments with her two daughters. Her three-year-old Nora has two rare syndromes which come along with many sub-diagnoses including hydrocephalus.
In this episode, Karley shares what it was like to receive a prenatal diagnosis and to play the waiting game until birth. She also shares the incredible experience of seeing her baby smile and open her eyes for the first time after a life-saving shunt was placed. We also dig into the dynamics of almost-daily appointments for her family.
Links:
Follow Karley on Instagram.
Follow me on Instagram.
Check out photos of Karley + fam on the website.
Check out our appointment day merch.
In this episode, Karley shares what it was like to receive a prenatal diagnosis and to play the waiting game until birth. She also shares the incredible experience of seeing her baby smile and open her eyes for the first time after a life-saving shunt was placed. We also dig into the dynamics of almost-daily appointments for her family.
Links:
Follow Karley on Instagram.
Follow me on Instagram.
Check out photos of Karley + fam on the website.
Check out our appointment day merch.
Released:
Apr 14, 2022
Format:
Podcast episode
Titles in the series (100)
Preface: Kimball’s Origin Story and a Little More About TRL by The Rare Life