27 min listen
In Conversation with Diverse Caregivers
ratings:
Length:
29 minutes
Released:
Sep 7, 2022
Format:
Podcast episode
Description
From siblings to grandparents to aunts and uncles and partners–a Duchenne or Becker diagnosis impacts across every family member, many of whom take on their own type of caregiving roles. Our host Rachel Poysky sits down with guests Susan Samuelson, Alyson Teal, and Hilary Becker who offer their unique insights on caring for a loved one with Duchenne and Becker, supporting primary caregivers, and sharing their own struggles and discoveries as people who “live Duchenne and Becker” from a different perspective.
Released:
Sep 7, 2022
Format:
Podcast episode
Titles in the series (18)
When Milestones Look a Little Different: On this episode, our host Rachel Poysky leads a conversation about meeting life milestones and how they make look a little different Living Duchenne. She is joined by special guests Betty Vertin, parent and PPMD Connect Coordinator, and Sarah McMahan, physical therapist, to discuss the importance of not only meeting children with Duchenne where they are, but meeting them where they are supposed to be. by PPMD's Living Duchenne