57 min listen
Advocacy Day 2022 is here!!
FromTalk Fragile X
ratings:
Length:
22 minutes
Released:
Feb 22, 2022
Format:
Podcast episode
Description
On Tuesday, March 1st the National Fragile X Foundation will be having their annual Advocacy Day virtually! This is an opportunity for families affected by Fragile X Syndrome, caregivers, self-advocates, doctors, and researchers to meet with their members of congress and be an advocate for fragile x. Whether that's sharing your fragile x diagnosis story or advocating for continued funding in research! It's an empowering opportunity to be a part of the fragile x community! On today's episode we also talk about the other important aspects of advocacy! We hope you leave this episode feeling encouraged as a self-advocate, full-mutation carrier, or parent of a child with fragile x!
Released:
Feb 22, 2022
Format:
Podcast episode
Titles in the series (64)
A Fragile X Full-Mutation Diagnosis story from a Mom of 2 FX Children - Boy & Girl by Talk Fragile X