#134 - The Lucky Few (with Heather Avis) | Down Syndrome Center Podcast Podcast

#179 - Exceptional Families of the Military: Rebecca Emerson and Austin Carrigg joined the podcast to talk about Exceptional Families of the Military, a 501 c(3) non-profit that helps families who are enrolled in the Department of Defense Exceptional Family Member Program. They discussed... by Down Syndrome Center Podcast

25 min listen

#178 - John's Crazy Socks!: John and Mark Cronin joined the podcast today to talk about their world famous sock store called John's Crazy Socks. Listen to the podcast to find out why their mission is about something so much greater than "just socks." For more... by Down Syndrome Center Podcast

29 min listen

#177 - Weight Loss Medications and Surgeries: Dr. Vibha Singhal, pediatric endocrinologist, and Dr. Kellen Hayes, bariatric surgeon, joined the podcast to give their thoughts on the latest buzz around weight loss medications and bariatric surgeries. They also give their thoughts... by Down Syndrome Center Podcast

29 min listen

#176 - Happy World Down Syndrome Day 2024!: NDSC Board Member and Self-Advocate Craig Blackburn joined the podcast to share about the amazing work that he is doing. He and his mother Pat Ehrle shared about their experiences and what World Down Syndrome Day means to them. by Down Syndrome Center Podcast

27 min listen

#175 - Inflammation in Down Syndrome (with Dr. Joaquin Espinosa): Dr. Joaquin Espinosa is the Executive Director of the Linda Crnic Institute for Down Syndrome at the University of Colorado. He joins the podcast today to discuss his research on inflammation in Down syndrome and how modifications in the immune... by Down Syndrome Center Podcast

29 min listen

#174 - Dating in Down Syndrome (with Terri Couwenhoven): Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She rejoined the... by Down Syndrome Center Podcast

25 min listen

#173 - Sexuality and Down Syndrome (with Terri Couwenhoven): Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She has been on the... by Down Syndrome Center Podcast

31 min listen

#172 - Hearing Health in Down Syndrome (with Dr. Heather Porter): Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 2 of the 2 part podcast. If you would like to suggest a topic for us to cover on the podcast, please send an... by Down Syndrome Center Podcast

23 min listen

#171 - Hearing Health in Down Syndrome (with Dr. Heather Porter): Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 1 of a 2 part series. If you would like to suggest a topic for us to cover on the podcast, please send an... by Down Syndrome Center Podcast

17 min listen

#170 - Dementia in Down Syndrome, Part 2 (with Dr. Seth Keller): Dr. Seth Keller concludes our discussion on dementia in Down syndrome with part 2 of this podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome... by Down Syndrome Center Podcast

22 min listen

#169 - Dementia in Down Syndrome, Part 1 (with Dr. Seth Keller): Dr. Seth Keller joined the podcast to share his insights into dementia and Down syndrome. This is part 1 of a 2 part podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like... by Down Syndrome Center Podcast

23 min listen

#168 - Year End Update!: Listen as Dr. Vellody reflects on the history of this podcast, the history of the Down Syndrome Center, and looks towards the future for both! To learn more about the Down Syndrome Center, you can visit . If you would like to suggest... by Down Syndrome Center Podcast

14 min listen

#167 - Talk Tools (with Heather Vukelich): Speech language pathologist Heather Vukelich joined the podcast today to inform us about TalkTools and techniques to address feeding and speech clarity in people with Down syndrome. Websites/Resources If you... by Down Syndrome Center Podcast

31 min listen

#166 - Gigi's Playhouse (with Nanci Gianni): Nancy Gianni, Founder and Chief Belief Officer of Gigi's Playhouse, joined the podcast as part of our "Meet The Nationals" series. Gigi's Playhouse provides free educational, therapeutic-based, and career development programs for individuals... by Down Syndrome Center Podcast

28 min listen

#165 - Friendship Circle (with Rabbi Mordy Rudolph): Rabbi Mordy Rudolph joined the podcast to discuss the Friendship Circle of Pittsburgh. This amazing organization was established in 2006 with the intention of creating a more inclusive community. It is a community-based program that... by Down Syndrome Center Podcast

24 min listen

#164 - Black Down Syndrome Association: Kelli Caughman and Crystal Lotterberry, founders of the Black Down Syndrome Association joined the podcast today to share their stories and how they led to the creation of this fantastic organization. For more information, go to . Co Founders... by Down Syndrome Center Podcast

42 min listen

#163 - Aging in Down Syndrome (Life Expectancy, Early Aging, Menopause): Dr. Brian Chicoine and Dr. Hannah Graham from the Adult Down Syndrome Center with Advocate Health Care in Park Ridge, Illinois joined the podcast today to discuss a listener question on menopause in Down syndrome. While I had these experts on... by Down Syndrome Center Podcast

25 min listen

#162 - Is Homeschooling An Option for Children with Ds? (with LaTaasha Byrd): LaTaasha Byrd joined the podcast today to answer listener questions about homeschooling. Is homeschooling a legitimate option for children with Down syndrome. If so, what are some important considerations that may be unique in this... by Down Syndrome Center Podcast

37 min listen

#161 - Special Olympics: Gary Cimaglia, Special Olympics North America’s Vice President of Sports, joined the podcast today to give a broad overview of the Special Olympics and how you and your loved ones can be involved. For more information, go to . If you... by Down Syndrome Center Podcast

26 min listen

#160 - Down Syndrome Regression Disorder (with Dr. Jon Santoro): Down Syndrome Regression Disorder (formerly called Unexplained Regression in Down Syndrome or Down Syndrome Disintegrative Disorder) is a diagnosis that has previously been missed or misdiagnosed in people with Down syndrome. It is a topic in... by Down Syndrome Center Podcast

25 min listen

#159 - Sensory Processing - Part 2 (Sound sensitivity, toothbrushing, haircuts, nail trims): Dr. Katie Frank from the Adult Down Syndrome Center in Park Ridge, IL joined the podcast to answer listener questions regarding sound sensitivity, toothbrushing, haircuts, and nail trims. So many people with Down syndrome have sensory... by Down Syndrome Center Podcast

18 min listen

#158 - Update on COVID (wit Dr. Andy Nowalk): The official pandemic status may be gone, but COVID still lingers. Listen as Dr. Andy Nowalk shares with us the latest updates on COVID, including the upcoming COVID vaccine boosters. by Down Syndrome Center Podcast

21 min listen

#157 - Understanding Grief and Grieving in People with Down Syndrome: How do we help people with Down syndrome during times of grief and grieving? Dr. Rose Reif, LCMHC, CRC, BC-TMH and owner of Reif Counseling Services, PLLC joined the podcast today to discuss her perspective. For more information on Dr. Reif,... by Down Syndrome Center Podcast

19 min listen

#156 - Behavioral Analysis (with Dr. Stacy Taylor): Dr. Stacy Taylor, with Advance Behavior and Analysis, is an expert in behavioral analysis and special interest in patients with Down syndrome, joined the podcast to discuss her approach to behavioral questions that we received from you! We... by Down Syndrome Center Podcast

33 min listen

#155 - Down Syndrome Affiliates in Action: As part of our Meet the Nationals series, Sarah Mulligan, Executive Director of Down Syndrome Affiliates in Action joined the podcast to talk about the great work that this organization does with local affiliates all over the country. For more... by Down Syndrome Center Podcast

23 min listen

#154 - Bitty and Beau's Coffee Shop: Ben Wright, co-creator of Bitty and Beau's Coffee along with his wife Amy Wright, joined the podcast today to discuss the motivation behind these amazing coffee shops! There will be a Bitty and Beau's Coffee Shop opening in Pittsburgh soon so we... by Down Syndrome Center Podcast

32 min listen

#153 - Improving Tolerance to Device Wearing (hearing aids, glasses, CPAP masks): Dr. Lina Patel from the Sie Center in Denver joined the podcast again today. Given that facial sensitivites are very common in people with Down syndrome, tolerance to wearing hearing aids, glasses, CPAP masks, etc. can be a challenge. Dr.... by Down Syndrome Center Podcast

25 min listen

#152 - Addressing Unhealthy Eating Habits (with Shannon Frizzell): Unhealthy eating patterns are unfortunately common in people with Down syndrome. On this podcast, dietician Shannon Frizzell joins to discuss a listener question on some engrained eating patterns in their loved one with Down syndrome. If... by Down Syndrome Center Podcast

17 min listen

#151 - A Conversation with Friends - Happy World Down Syndrome Day!: In honor of World Down Syndrome Day, enjoy this roundtable coversation recorded between my brother and his friends! by Down Syndrome Center Podcast

13 min listen

#150 - How to Address Throwing Behaviors (with Dr. Tarin Santamaria): Dr. Santamaria rejoins the podcast to address a listener question on throwing behavior. What's the best approach when your child with Down syndrome has a tendency to throw objects? And how do you keep everyone else safe? :) Join us... by Down Syndrome Center Podcast

19 min listen

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#134 - The Lucky Few (with Heather Avis)

#134 - The Lucky Few (with Heather Avis)

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