#151 - A Conversation with Friends - Happy World Down Syndrome Day!

FromDown Syndrome Center Podcast

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#151 - A Conversation with Friends - Happy World Down Syndrome Day!

FromDown Syndrome Center Podcast

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Length:

13 minutes

Released:

Mar 21, 2023

Format:

Podcast episode

Description

In honor of World Down Syndrome Day, enjoy this roundtable coversation recorded between my brother and his friends!

Released:

Mar 21, 2023

Format:

Podcast episode

Titles in the series (99)

This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.

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#92 - COVID-19 Vaccine in People with Down Syndrome: Dr. Andrew Nowalk from Pediatric Infectious Diseases joined the podcast today for an update on COVID-19 infections in Down syndrome. We discussed the COVID-19 vaccine in general and also specifically in people with Down syndrome. Down Syndrome... by Down Syndrome Center Podcast
30 min listen
#80 - Autism and Down Syndrome (with Dr. Nicole Baumer): Dr. Baumer re-joined the podcast to share her pediatric neurodevelopmental expertise in the dual diagnosis of autism and Down syndrome. by Down Syndrome Center Podcast
27 min listen
#87 - Down Syndrome Clinic to You - DSC2U (with Dr. Brian Skotko): Dr. Brian Skotko joined us again as a guest one the podcast to discuss Down Syndrome Clinic to You (DSC2U), a new and innovative way to get personalized healthcare recommendations for your loved one with Down syndrome. Down Syndrome Clinic to You... by Down Syndrome Center Podcast
15 min listen
#94 - Skin Conditions in Down Syndrome, Part 1 (with Dr. Jillian Rork) by Down Syndrome Center Podcast
35 min listen
#83 - A Friend Like Anian (with Meeka Caldwell): In a continuation of our discussions on Race and Down Syndrome, author Meeka Caldwell joined the podcast today to talk about her experiences as a mother and her children's book "A Friend Like Anian." Amazon Link If you would like an... by Down Syndrome Center Podcast
18 min listen
#86 - Learning to Read - Tips & Resources for Success (with Dana Halle).: Today, we were joined by Dana Halle, Co-Founder/Executive Director of the Down Syndrome Foundation of Orange County and Developer and Lead Instructor of The Learning Program and LP Online. We discussed tips and resources for ultimate... by Down Syndrome Center Podcast
18 min listen
#113 - Behavioral Evaluation and Approach in Older Children (with Dr. Tarin Santamaria): Dr. Tarin Santamaria, PsyD, NCSP, is the clinical psychologist for our Down Syndrome Center of Western Pennsylvania. She joined the podcast today to discuss how to assess and approach behaviors in school-aged children with Down syndrome. Please... by Down Syndrome Center Podcast
20 min listen
#90 - Financial Planning Advice and Resources (with Rob Wrubel): Listen in as Rob Wrubel shares personal and professional advice on financial planning on today's podcast. You can find more information and resources from Rob at his website at . by Down Syndrome Center Podcast
17 min listen
#84 - Toilet Training in Down Syndrome (with Dr. Lina Patel, PsyD): Dr. Lina Patel, psychologist from the Sie Center at Children's Colorado, joined Dr. Vellody on the podcast to talk about toilet training. Dr. Patel is the co-author of the recent book Potty Time for Kids with Down Syndrome: Lose the Diapers, Not... by Down Syndrome Center Podcast
30 min listen
#88 - Hot off the Presses! Adult Healthcare Guidelines (with Dr. Peter Bulova): Dr. Peter Bulova, Director of the Adult Clinic at the Down Syndrome Center of Western Pennsylvania, joins us on the podcast to talk about the recently released Adult Down Syndrome Healthcare Guidelines. by Down Syndrome Center Podcast
21 min listen
#82 - COVID and DS #6, Return to School, Part 2 (with Dr. Andrew Nowalk): Friend of the podcast, Dr. Andrew Nowalk, MD, PhD, joined us again for an update on optimizing safety in school re-opening. by Down Syndrome Center Podcast
25 min listen
#156 - Behavioral Analysis (with Dr. Stacy Taylor): Dr. Stacy Taylor, with Advance Behavior and Analysis, is an expert in behavioral analysis and special interest in patients with Down syndrome, joined the podcast to discuss her approach to behavioral questions that we received from you! We... by Down Syndrome Center Podcast
33 min listen
#111 - School Based Physical Therapy in Children with Down syndrome (with Hellen Milligan, PT, MPT)): Helen Milligan, physical therapist with the Trisomy 21 Program at Children's Hospital of Philadelphia, joined the podcast to answer a listener question regarding physical therapy in the school aged child. by Down Syndrome Center Podcast
22 min listen
#96 - Skin Conditions in Down Syndrome, Part 2 (with Dr. Jillian Rork): Dr. Jillian Rork joins the podcast again today as a board certified pediatric dermatologist to discuss skin conditions in Down syndrome. This is Part 2 of a video podcast series on this topic. Topics in today's episode include: Seborrheic... by Down Syndrome Center Podcast
39 min listen
#81 - Updates from the DS Center, Down Syndrome Association (with Erin Kelly and Meredith Peterson): Erin Kelly (Down Syndrome Center of Western PA Program Coordinator) and Meredith Peterson (Executive Director, Down Syndrome Association of Pittsburgh) joined Dr. Vellody on today's podcast to discuss exciting changes at both organizations. Down... by Down Syndrome Center Podcast
22 min listen
#93 - Infantile Spasms (with Dr. Nicole Baumer): Dr. Nicole Baumer joined the podcast again today, this time to discuss a type of seizure called infantile spams that are seen more commonly in people with Down syndrome. For more information and helpful videos, see: Epilepsy Foundation Dr.... by Down Syndrome Center Podcast
19 min listen
#108 - Pain Perception and Expression in Down Syndrome (with Dr. Meredith Wright Whittaker): Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome. For more information, please see the article discussed: by Down Syndrome Center Podcast
25 min listen
#110 - COVID and Return to School 2021 (with Dr. Andrew Nowalk): Dr. Nowalk joined the podcast to discuss return to school for 2021 and ways that it looks different than even last year. by Down Syndrome Center Podcast
24 min listen
#89 - COVID Town Hall (hosted by DSA Pittsburgh): The Down Syndrome Association of Pittsburgh hosted a virtual town hall to discuss questions related to COVID and Down Syndrome. Dr. Vellody, Dr. Nowalk, and Dr. Freeman were all present to answer questions live. by Down Syndrome Center Podcast
67 min listen
#119 - What About College for People with Down Syndrome?: Tom Sannicandro joined the podcast today to share his expertise on college options available for people with Down syndrome. Think College Special Needs Trusts Online Partner with Us! by Down Syndrome Center Podcast
25 min listen
#102 - Orthodontic Care (with Dr. Lindsay Schuster): Listen as Dr. Vellody answers yet another listener question, this time discussing orthodontic care with Dr. Lindsay Schuster. by Down Syndrome Center Podcast
22 min listen
#99 - Education in Ds - Past, Present, and Future (with Ricki Sabia, JD): Dr. Vellody was joined by NDSC Senior Education Policy Advisor Ricki Sabia to discuss topics surrounding Education in people with Down syndrome. Ricki shared her extensive expertise in this area as well as her personal experiences as a mother... by Down Syndrome Center Podcast
42 min listen
#91 - Medical History of Down Syndrome (with Dr. Kristen Ehrenberger, MD, PhD): Dr. Kristen Ehrenberger, MD, PhD joins us on the podcast today to discuss the medical history of Down syndrome. Dr. Ehrenberger is dually boarded in Internal Medicine and Pediatrics, and she also has a degree in Medical History. by Down Syndrome Center Podcast
21 min listen
#85 - Does having Ds lead to higher risk in COVID? (COVID and DS#7, with Dr. Andrew Nowalk) by Down Syndrome Center Podcast
21 min listen
#98 - World Down Syndrome Day Special Interview!: In honor of World Down Syndrome Day, we had some VERY special guests including my brother and parents! Listen in as they discuss their experiences 46 years ago this month and how they compare to today. by Down Syndrome Center Podcast
13 min listen
#126 - Omicron Fading? Where Do We Go From Here?: Friend of the podcast, Dr. Andy Nowalk rejoins the podcast to give us his thoughts on the COVID pandemic. Questions surrounding the current status of Omicron, need for masking, vaccine timing for younger children are all addressed on today's... by Down Syndrome Center Podcast
25 min listen
#120 - Alzheimer Disease in Down Syndrome: Dr. Peter Bulova joins the podcast today to discuss myths and facts about Alzheimer disease in Down syndrome. Adult Down Syndrome Center Please consider partnering in the work of the Down Syndrome Center, including this podcast, by going... by Down Syndrome Center Podcast
20 min listen
#101 - 2021 NDSC Convention (with Sarah Hill): Dr. Vellody is joined by Sarah Hill who is the Convention Director for the National Down Syndrome Congress. The 2021 NDSC Convention is a one-of-a-kind opportunity for families and self-advocates to get information on Down syndrome. This... by Down Syndrome Center Podcast
18 min listen
#140 - COVID Update - Omicron Boosters!: Dr. Nowalk joined the podcast again to give us a general COVID update and discuss specifically the new Omicron boosters. CDC Statement on Omicron Boosters If you would like to suggest a topic for us to cover on the podcast, please send an e-mail... by Down Syndrome Center Podcast
27 min listen
#116 - Unexplained Regression in Down Syndrome: Dr. Stephanie Santoro with the Mass General Down Syndrome Program joined the podcast to discuss a relatively newly recognized condition called by several names including Unexplained Regression in Down Syndrome (URDS), Down Syndrome Disintegrative... by Down Syndrome Center Podcast
15 min listen

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#179 - Exceptional Families of the Military: Rebecca Emerson and Austin Carrigg joined the podcast to talk about Exceptional Families of the Military, a 501 c(3) non-profit that helps families who are enrolled in the Department of Defense Exceptional Family Member Program. They discussed... by Down Syndrome Center Podcast
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#178 - John's Crazy Socks!: John and Mark Cronin joined the podcast today to talk about their world famous sock store called John's Crazy Socks. Listen to the podcast to find out why their mission is about something so much greater than "just socks." For more... by Down Syndrome Center Podcast
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#177 - Weight Loss Medications and Surgeries: Dr. Vibha Singhal, pediatric endocrinologist, and Dr. Kellen Hayes, bariatric surgeon, joined the podcast to give their thoughts on the latest buzz around weight loss medications and bariatric surgeries. They also give their thoughts... by Down Syndrome Center Podcast
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#176 - Happy World Down Syndrome Day 2024!: NDSC Board Member and Self-Advocate Craig Blackburn joined the podcast to share about the amazing work that he is doing. He and his mother Pat Ehrle shared about their experiences and what World Down Syndrome Day means to them. by Down Syndrome Center Podcast
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#175 - Inflammation in Down Syndrome (with Dr. Joaquin Espinosa): Dr. Joaquin Espinosa is the Executive Director of the Linda Crnic Institute for Down Syndrome at the University of Colorado. He joins the podcast today to discuss his research on inflammation in Down syndrome and how modifications in the immune... by Down Syndrome Center Podcast
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#174 - Dating in Down Syndrome (with Terri Couwenhoven): Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She rejoined the... by Down Syndrome Center Podcast
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#173 - Sexuality and Down Syndrome (with Terri Couwenhoven): Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She has been on the... by Down Syndrome Center Podcast
31 min listen
#172 - Hearing Health in Down Syndrome (with Dr. Heather Porter): Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 2 of the 2 part podcast. If you would like to suggest a topic for us to cover on the podcast, please send an... by Down Syndrome Center Podcast
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#171 - Hearing Health in Down Syndrome (with Dr. Heather Porter): Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 1 of a 2 part series. If you would like to suggest a topic for us to cover on the podcast, please send an... by Down Syndrome Center Podcast
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#170 - Dementia in Down Syndrome, Part 2 (with Dr. Seth Keller): Dr. Seth Keller concludes our discussion on dementia in Down syndrome with part 2 of this podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome... by Down Syndrome Center Podcast
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#169 - Dementia in Down Syndrome, Part 1 (with Dr. Seth Keller): Dr. Seth Keller joined the podcast to share his insights into dementia and Down syndrome. This is part 1 of a 2 part podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like... by Down Syndrome Center Podcast
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#168 - Year End Update!: Listen as Dr. Vellody reflects on the history of this podcast, the history of the Down Syndrome Center, and looks towards the future for both! To learn more about the Down Syndrome Center, you can visit . If you would like to suggest... by Down Syndrome Center Podcast
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#167 - Talk Tools (with Heather Vukelich): Speech language pathologist Heather Vukelich joined the podcast today to inform us about TalkTools and techniques to address feeding and speech clarity in people with Down syndrome. Websites/Resources If you... by Down Syndrome Center Podcast
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#163 - Aging in Down Syndrome (Life Expectancy, Early Aging, Menopause): Dr. Brian Chicoine and Dr. Hannah Graham from the Adult Down Syndrome Center with Advocate Health Care in Park Ridge, Illinois joined the podcast today to discuss a listener question on menopause in Down syndrome. While I had these experts on... by Down Syndrome Center Podcast
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#162 - Is Homeschooling An Option for Children with Ds? (with LaTaasha Byrd): LaTaasha Byrd joined the podcast today to answer listener questions about homeschooling. Is homeschooling a legitimate option for children with Down syndrome. If so, what are some important considerations that may be unique in this... by Down Syndrome Center Podcast
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#159 - Sensory Processing - Part 2 (Sound sensitivity, toothbrushing, haircuts, nail trims): Dr. Katie Frank from the Adult Down Syndrome Center in Park Ridge, IL joined the podcast to answer listener questions regarding sound sensitivity, toothbrushing, haircuts, and nail trims. So many people with Down syndrome have sensory... by Down Syndrome Center Podcast
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#157 - Understanding Grief and Grieving in People with Down Syndrome: How do we help people with Down syndrome during times of grief and grieving? Dr. Rose Reif, LCMHC, CRC, BC-TMH and owner of Reif Counseling Services, PLLC joined the podcast today to discuss her perspective. For more information on Dr. Reif,... by Down Syndrome Center Podcast
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#153 - Improving Tolerance to Device Wearing (hearing aids, glasses, CPAP masks): Dr. Lina Patel from the Sie Center in Denver joined the podcast again today. Given that facial sensitivites are very common in people with Down syndrome, tolerance to wearing hearing aids, glasses, CPAP masks, etc. can be a challenge. Dr.... by Down Syndrome Center Podcast
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#151 - A Conversation with Friends - Happy World Down Syndrome Day!

#151 - A Conversation with Friends - Happy World Down Syndrome Day!

Description

Titles in the series (99)

More Episodes from Down Syndrome Center Podcast