An interview with Gina Assaf about her patient-led research on "long haul" Covid, which refers to long term Covid-19 effects. Assaf is not a professional medical researcher; she was motivated to initiate this research due to her own covid experiences and frustration with the lack of information about her, and other sufferers', experience. We talk about the benefits and challenges of such "patient led" research, and interesting findings her team has made. One topic discussed is the similarity between long haul covid and Chronic Fatigue Syndrome (CFS, ME) symptoms.