God & Me: His Story, My Journey with Muscular Dystrophy

By Peter E Brown

He wasn’t supposed to live. The odds were against him, and he beat them. He saw victory in things impossible. He sees the silver lining instead of the darkness. He sees hope when there is none. He speaks inspiration when others delve into the negative. Nothing in his life was simple and easy, but he persevered. This is his story.

• Language: English
• Publisher: WestBow Press
• Release date: Oct 17, 2018
• ISBN: 9781973639442

Peter E Brown

He is a storyteller. His life is a series of stories as he sees it. His life was given to him as a gift and he wants to share that with others who will listen. He has pursued many avenues that would allow him to tell stories and his story. He tried his hand at Broadcasting to tell his stories. He was a dreamer so he became a travel agent where he could travel the world through other people. He used his ability in music share his heart through story as well. Being a dreamer gave him creativity in his writing and ability to tell stories and he continues to do so  through the writing of his biography. After that the stories continue.

Book preview

Chapter 1

Looking up at my mother I had no idea the difficult decision she had just made. One year before that, when my mother was pregnant with me, her sister was encouraging her to have me aborted because she didn’t want my mom having a child with a debilitating disorder. My aunts reasoning was that no nephew of hers would be imperfect. Looking up at my mother I had no idea the difficult decision she had just made. One year before that, when my mother was pregnant with me, her sister was encouraging her to have me aborted because she didn’t want my mom having a child with a debilitating disorder. My aunts reasoning was that no nephew of hers would be imperfect. My mother cried out for God’s help because she didn’t know what else to do. He told her that she must have the baby My mother cried out for God’s help because she didn’t know what else to do. He told her that she must have the baby and raise him because he will be special. She decided that no matter what, she would bring her beautiful child into the world to hopefully make it a better place.

So there I was only an infant and not knowing what the world had in store for me. Born into a world where I didn’t know whether I would have a disability or be a track star. My first battle came when I was just two weeks old and started to show signs that there was something seriously wrong when my fever spiked and I could not keep food down. I started to show further symptoms such as blue skin discolouration. They started to feel it might be a disorder called Blue Baby Syndrome and at this point as my health was continuing to deteriorate the doctors were at their wits end, and felt there was nothing more that could be done.

Doctors told my mother that barring a miracle you should call the family in, to say their last goodbyes. All my mother could do is what she was taught at catholic boarding school and that was pray, so she did. I was close to dying when God stepped in and the doctors found a way to fix what was wrong with me. One of the interns suggested that a blood transfusion might help and at least they had to do something, so they gave me my mother’s blood.

I started to show, what the doctors said was a remarkable improvement and said it was a miracle. It seemed that God had answered a young woman’s plea for His intervention. He told her that He had plans for this beautiful little life. As I got better and stronger I started to grow as a normal healthy child and there didn’t seem to be any signs of the muscular dystrophy. The name she chose rang true that day as Peter - means rock.

A month later my young mother took me home. Unfortunately my mom’s boyfriend didn’t embrace my arrival as well and always resented me because he was no longer number one to my mother. Plus, he was also a heavy drinker and drug user. My mother told me always felt God had His hand over my protecting me from this very abusive man.

The last straw was when she came home one day and she noticed there were some blisters on my back in the back of my legs. She asked my great aunt where these came from. She said she went to the market and left me in the care of my mom’s boyfriend. When she arrived back at home she noticed the blisters. He explained he tried to give me a bath but the water got too hot. My great aunt knew full well that was a lie because of his pattern of behaviour previous to this. This was the last straw. My mom decided she had to leave this man because she just could not trust him any longer to care for us. She took me and my sister north to Fort St. John.

When my mother arrived in Fort St. John she moved in with her sister and her husband. We stayed there until my sister’s father came back from his tour with the navy. His name was Ray. He took us all in and decided that he would take care of me like I was his own. This was a very generous thing for him to do. I now had a father that truly cared about my well being.

Through those early years of child development I had not yet shown symptoms of any kind of this muscular dystrophy that I supposedly had a 50% chance of contracting. Of course nothing was for sure because of previous cases in congenital history in the family. Not knowing whether it would ever show up my mother just continued to raise me, the child that appeared normal in every way.

Running and playing and being a kid was a given. That being said, my mom told me that there always felt like a hand of protection over me. She would watch me she said with a caution because she still didn’t understand how I seemed untouched by this horrible disease. She supposed that God had spared me and this was a good thing. She told me that she never doubted how special I really was when I looked in her eyes. She also told me when I laughed it brought her immense joy.

Chapter 2

The first day of kindergarten was coming close. My mother I was dreading leaving me without her there. For so long she and I were joined at the hip and did everything together. She didn’t want to leave me out of her sight, for fear that I would get hurt but I did not. Beyond just the average skinned knees.

So now the first day of kindergarten arrived and we got in the car went off to school. I remember it was a sunny day in September and the birds were singing. I was excited for