Beyond the Rays of Hope: A Man’S Faith and Attitude Amidst a Terminal Disease
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About this ebook
David Kurt McClain
I am David Kurt McClain and I was born in North Texas and raised in Rockwall. In 1985 I took a trip to visit Connecticut. One wife, three kids, two daughter-in-laws, one son-in-law, and three granddaughters later, I am still visiting. In 2003 we were hit with some devistating news. I was diagnosed with ALS (Lou Gehrig’s Disease). The doctors told me that I had one or two years to live. Here I am, thirteen years later, still kicking (figuratively)! I joined facebook in 2008 and as I was reading the post of others, I realized that many people are hurting inside. Although I am paralyzed from my neck down, my mind is still strong and I have a message of HOPE to share. Beyond the Rays of HOPE is a compialation of eight years of my facebook posts; intended to encourage, inspire, and at times, make you laugh.
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Beyond the Rays of Hope - David Kurt McClain
2016 David Kurt McClain. All rights reserved.
No part of this book may be reproduced, stored in a retrieval system, or transmitted by any means without the written permission of the author.
Published by AuthorHouse 06/15/2016
ISBN: 978-1-5246-1258-0 (sc)
ISBN: 978-1-5246-1257-3 (e)
Any people depicted in stock imagery provided by Thinkstock are models,
and such images are being used for illustrative purposes only.
Certain stock imagery © Thinkstock.
Because of the dynamic nature of the Internet, any web addresses or links contained in this book may have changed since publication and may no longer be valid. The views expressed in this work are solely those of the author and do not necessarily reflect the views of the publisher, and the publisher hereby disclaims any responsibility for them.
NIV
Scripture quotations marked NIV are taken from the Holy Bible, New International Version®. NIV®. Copyright © 1973, 1978, 1984 by International Bible Society. Used by permission of Zondervan. All rights reserved. [Biblica]
NKJV
Scripture quotations marked NKJV are taken from the New King James Version. Copyright © 1982 by Thomas Nelson, Inc. Used by permission. All rights reserved.
Contents
Dedication:
A Note of Thanks
Foreword
Seasons of Our Life
David McClain’s Letter
Thinking Back
Throw-Back Thursday
When My Eyes Are On You
Kathleen’s Song
Cheers through tears
Ditch the dis
and Increase the Courage
Hurricane Sandy on the Way
Hurricane In Your Brain?
Priceless!
How Long?
What If?
Get Up and Try Again
Apple In My Heart
On The Holy Spirit
A Few Words From My Heart
We Can Learn From the Eagles.
I Am Who I Am Because You Are Who You Are
The SON That Never Sets
You Are
Battle With The Gnats: The Next Chapter
Don’t Fall for Satan’s Placebo!
Need It or Want It?
The Next Time I Speak
Just My Shell
Dr. Raxlen’s Letter
Dr. Takoudes’s Letter
Ode To David With ALS
Dedication:
I want to dedicate Beyond the Rays of Hope to my family. You have been my rock and my inspiration to keep on keeping on. You are the reason that I keep on fighting even when I feel like giving up.
To my wife, Donna, I would have been gone a long time ago if it were not for you. Thank you for honoring our wedding vows, For better or for worse, in sickness and in health…
. I love ya’ll.
One Big Happy Family
Josh, Ashley, Donna, Jeff, Kathleen, Mimi, Ben and Me
A Note of Thanks
First of all, I want to thank my Lord and Savior, Jesus Christ, for blessing me with life way beyond the ALS life expectancy.
Next, I want to thank our friend, Ann Giangarra for printing eight years of my facebook posts and my mother, Grace McClain, for the countless hours of putting this book together. Also, a thank you to my wife, Donna, for doing the proof reading of the book. Without the three of you, there would be no book.
Last, but certainly not least, I want to thank all of you who kept encouraging me to write this book. I do not want to name names for fear of leaving someone out. You know who you are and I am so grateful to each and everyone of you.
Love,
Tex
Foreword
This is not your typical book in that it is not written in chapter format. It is rather a (chronological) collection of my facebook posts from the past eight years (2008-2015). My eyescan computer is my only way of communicating with family, friends and the world. Each day I go on facebook to stay in touch with loved ones, friends, and those I may not even know yet. I hope when you read this book that you will be uplifted in some way.
Some of the clever one liners
that I used in the book may seem familiar because I got some of them from my T.V.
preachers.
All HOPE
photos taken by Donna Nuzzello
Seasons of Our Life:
Part One
Part Two
Part Three
Seasons of Our Life:
Part One
1.jpgDavid Kurt McClain
6 months old
Seasons of Our Life
Winter, Spring, Summer and Fall, These are the Seasons that touch us all.
Spring starts with a seed, planted and fed, bringing new life for Summer ahead.
Flowers and showers, the smell of fresh rain, warm breezes and rainbows, over the plains.
Summer is hot sunshine, after Spring has bloomed, tall trees open leaves, starting in June.
Thunder and lightning and rivers that flow, green grass and bullfrogs and fireflies that glow.
Fall is the display of Summer and Spring, the tapestry of God, to His glory bring.
Brilliant colors and beauty which takes our breath, but Winter is approaching, which brings forth death.
Winter is the end, of life that was new, daylight that’s dimming, and days that are few.
Winter is closure, the year is at end, but the cycle of seasons, will soon start again.
The seasons of nature, with memories each brings, praise to the Creator, as His creation sings.
The seasons of nature full of splendor and strife, now let me tell you, of the seasons of life.
Spring is conception, that starts in the womb, a child with new life, to love and to groom.
To raise and to teach of the life’s lessons to learn, to warn and protect as the season soon turns.
Summer is adolescence, wreckless and free, circumstances of decisions, we each must see.
Decisions, careers and love in our hearts, the love of our life and a new family starts.
Fall is mid-life, with wisdom it brings, an empty nest, cause you cut the strings.
Long walks and cruises and warmth by the fire, gray hair and slow life, as you look to retire.
Winter is the elderly, with smiles and with tears, the end of life’s seasons, the end of life’s years.
Winter is history, with stories to tell, a good name passed down, and knowledge as well.
The end of life’s seasons, each one of us will taste, each one will cross over, when death shall we face.
Death knows no season, it takes from all four, brings sorrow and heartache, tears and much more.
But, no need to worry, be scared or fear, death was defeated by One held so dear.
God sent His Son to die on a tree, He gave up His life for He loves you and me.
So, regardless the season that you are currently in, put your faith in Jesus and a new life begins.
By David K. McClain 6-10-12
David McClain’s Letter
A Story of ALS and Hope
Greetings to each of you in the name of our Lord Jesus Christ. My name is David Kurt McClain, I was born and raised in north Texas. I came to visit the State of Connecticut back in 1984 and am still visiting. I am the husband of one and the father of three. To those who know me, I thank you for your prayers and encouraging emails. To those who don’t know me, I ask that you take a moment to read this letter and consider my thoughts. I want to give each of you a quick update on my physical condition, then, I want to share something from my heart. I want to share this with you now because I don’t know how much longer I have. I may have days, I may have weeks, or, God may grant me with yet another year.
I am still hanging on by a nail that God has not yet trimmed. As most of you know, I was diagnosed with Lyme disease back in 2001, then ALS (Lou Gehrig’s Disease) in 2003. The average life expectancy with ALS is 1 to 3 years. I have been blessed and have beaten the average. ALS affects the brain neurons in a way so that the brain no longer communicates with the spinal cord, ultimately causing paralysis. As a result, the muscles literally waste
away. Strangely though, ALS does not affect the mind, heart, bladder or bowels. The two main causes of death with ALS are suffocation due to lung failure and pneumonia. Currently, I am paralyzed from my shoulders down. I lay motionless for 23 of the 24 hours in each day. I am a prisoner in my own body, an alive mind in a dead shell. Imagine having your arms and legs tied up and you have an itch on your back and can’t scratch it. I cannot stand, walk, sit up or move my arms and legs. My hands are swollen from lack of circulation and several times a day I have to have someone lift my arms so they won’t fall asleep. Several of my toes on each foot have curled
under. I cannot speak, eat or drink and swallowing is extremely difficult for me. I am fed by a feeding tube implanted in my stomach. I cannot breathe on my own. I have a hole in my neck and a plastic tube in my windpipe from a tracheotomy that I had to have six years ago. I am on a ventilator 24 hours a day because my diaphragm muscles are too weak to fill my lungs with air. I cannot cough up the secretions in my lungs so I have a special machine that vacuums
out my lungs. I drool uncontrollably and have a wash rag in my mouth 24 hours a day to absorb my saliva. When I get cold or stressed out, I grind my teeth and have ground much of the enamel right off of my molars. Several times a day when I either cough or sneeze, my jaw will lock up causing me to bite my tongue. I have to wait several minutes until my jaw loosens up or else I have to buzz for someone to come and pry my jaw open, releasing my tongue from the grip of my teeth. My life is lived in my mind. I lay in bed with just my thoughts and my memories. The highlight of my day is actually when I am sleeping at night. When I dream at night, I am whole, I am not paralyzed. Amazing how the mind works. It’s a strange sensation that I have, in my mind, I can see my muscles moving, in my mind, I can feel my muscles moving, but in reality, nothing moves. I have a special