Parting: A Handbook for Spiritual Care Near the End of Life
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Designed for easy reading by weary travelers, this practical, pocket-sized guide prepares the spiritual companion for an enriching experience, even on the journey toward life's end. It is an indispensable tool for family members and friends, hospice workers, religious leaders, counselors, and medical providers.
Alvin B. Tillery, Jr.
Jennifer Sutton Holder is geriatrics chaplain at Baylor University Medical Center and serves as clergy in the Episcopal Diocese of Dallas.
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Parting - Alvin B. Tillery, Jr.
Parting
Published in association with the Foundation for End-of-Life Care and the P. L. Dodge Foundation
Parting
A HANDBOOK FOR SPIRITUAL CARE NEAR THE END OF LIFE
JENNIFER SUTTON HOLDER & JANN ALDREDGE-CLANTON
The University of North Carolina Press
Chapel Hill and London
© 2004
The University of North Carolina Press
All rights reserved
Manufactured in the United States of America
Set in Minion by Eric M. Brooks
The paper in this book meets the guidelines for
permanence and durability of the Committee on
Production Guidelines for Book Longevity of the
Council on Library Resources.
Library of Congress
Cataloging-in-Publication Data
Holder, Jennifer Sutton.
Parting: a handbook for spiritual care near
the end of life / Jennifer Sutton Holder and
Jann Aldredge-Clanton.
p. cm.
ISBN 978-0-8078-5529-4 (pbk.: alk. paper)
1. Death. 2. Spiritual life. I. Aldredge-Clanton,
Jann, 1946- II. Title.
BD444.H58 2004
155.9’37—DC22 2003021553
12 11 10 09 08 6 5 4 3 2
Contents
Foreword by J. Richard Williams, M.D.
Acknowledgments
Introduction by Larry R. Churchill, Ph.D.
1 Setting Out
Offering Spiritual Companionship
Itineraries: Stops on Spiritual Journeys
Two Levels of Needs: Physical and Spiritual
2 A Personal Journey
Companions Welcome
Packing for the Road Ahead
Presence
Listening
Acceptance
Candor
Patience
Advocacy
Humor
Courage
Dependability
Hope
Creativity
Sensitivity
Curiosity
Time
Crossing the Bridge
Coming Closer
Spiritual Conversation Starters
3 Spiritual Scenery
Life Review
Journaling
Artistry
Ethical Wills
I’ve Always Wanted to ...
Reunions and Gatherings
Rituals
Personal Rituals
Centering Prayer
Simple Rituals
Ceremonies
4 For Weary Travelers
Comforts for the Dying
Touch
The Furry Touch
Tips for Touching
Sight
In the Looking Glass
Guided Imagery
Sound
Speech
Music
Taste and Smell
Flavors
Aromas
Comfort from a Distance
Companion Comforts
Accepting Limits
Mini-Breaks
Food and Exercise
Sharing the Burden
Accepting Help
Utilizing Volunteers
Professional Help
Giving and Receiving Care
Guilt and Resentment
Realistic Expectations
Easing Up
Honesty
Trouble along the Road
5 Parting Ways
Unpacking Life’s Baggage
Giving Permission to Go
Reconciliation
Holy Silence
Suspending Disbelief
Letting Go
Saying Goodbye
Love and Tears
A Child’s Goodbye
Dying Alone
Safe Passage
A Sacred Journey
Unpredictable Timing
Comforting Arms
6 Coming Home
Foreword
This handbook seeks specifically to assist anyone who chooses to serve as a close companion for a terminally ill relative or friend. These companions are truly the unsung heroes of end-of-life care. Our hope is that the handbook will teach them how to include spiritual care in companionship.
What do we mean by spiritual care? Spiritual care for the purpose of this handbook is soul care, helping the human spirit in its search for peace. It is the attempt to help those near the end of life feel whole, fulfilled, and in harmony with their world and their higher power. Religious experience may or may not be spiritual, and spiritual experience may or may not be religious. Regardless of the dying person’s religious persuasion or faith tradition, spiritual care near the end of life supplies a deep human need.
The handbook is the result of many months of vision, inspiration, dedication, and hard work. It reflects insights gained from numerous interviews with persons who have accompanied others at the end of life: hospice professionals, nurses, physicians, and other health care-givers; ministers of many faiths; friends and family. We also interviewed men and women as they approached death. From a rabbi, to a priest, to a Muslim imam, to a native American spiritual leader, to a practitioner of Christian Science, and to many others we went, researching this handbook.
The time leading up to conducting the interviews was consumed by conversations between Dr. Larry Churchill and me. We were joined later by Rev. Luther Jones. These conversations focused upon our deep concerns that there were large numbers of people dying every day with unmet spiritual needs, and that it was their closest companions who seemed to be in the best position to meet those needs. During this period the vision for the handbook crystallized, along with a plan to use interviews as the basis for its content.
In an effort to identify the ideal authors, I sought guidance from Travis Maxwell, whom I remembered as chaplain on the oncology unit at Baylor University Medical Center in Dallas when I practiced there in the 1970s and 1980s. Travis delivered pastoral care and spiritual care to critically ill patients and families with effectiveness and skill, a highly valued member of the caregiving team on the unit. It was Travis who led us to the handbook’s authors, Jennifer Sutton Holder and Jann Aldredge-Clanton. I want to express my sincere appreciation to them and to all of those persons along the way who, through numerous excited conversations, gave inspiration and encouragement to this effort.
It is not my intention to dedicate this work to any specific person or persons, other than those countless personal companions who have taken care of a terminally ill relative or friend, especially those who have encountered and addressed an unmet spiritual need in the final journey of life. I would, however, like to mention my mother, Annie Laurie Beckham Williams, and mother-in-law, Rosalind Repp Jennings, both of whom served with compassion and skill as spiritual companions for their husbands.
J. Richard Williams, M.D., Chairman and President Foundation for End-of-Life Care
Acknowledgments
The authors would like to thank the following individuals who offered their time and insight during interviews for this book: Rev. Joe Davis; Rev. Thom McLeod; Rev. Harold