“We had never heard of Dead in Bed Syndrome until the day Daniella died. It wasn’t discussed in her 12 years of living with type 1. We quickly learned quite a lot about DIBS, though they still don’t know what causes it. Usually, it is when hypoglycaemia, or a ‘low’ occurs during the night, when the person is asleep. Sometimes it can be caused by diabetic ketoacidosis (DKA) as well. Some of the children who have passed have been undiagnosed.
“But Daniella was well. She loved school, she
