NPR

A rare and neglected flesh-eating disease finally gets some attention

It's called noma. It's a potentially fatal bacterial infection. And it's been so neglected that it wasn't even on the official WHO list of Neglected Tropical Disease — until now.
A young girl in the courtyard of Nigeria's Sokoto Noma Hospital. She arrived with her mother for reconstructive operations, including a skin graft taken from her chest to replace tissue destroyed by noma.

It started out as malaria – or at least that's what her grandparents thought. But there was another devious infection lurking beneath the surface of her skin and inside her mouth.

Mulikat Okanlawon was a child, only 6 or 7 years old, when she contracted noma – a rare gangrenous infection that ate away at the flesh and bone in her face.

Compared to others who get noma, Mulikat was lucky. It almost always leads to death.

Those who survive are left with substantial facial disfiguration that requires repeated reconstructive plastic surgery to repair. That's why some global health workers call noma the "face of poverty."

Despite the scars, experts say that noma has been left unrecognized by the greater global health community because it is so rare and so little was known about it. Now, in a great win for noma advocates and survivors, noma has been added to the WHO list of Neglected Tropical Diseases, and with that will bring

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