Staring at the consultant, I shook my head.
‘What’s Usher syndrome?’ I said.
‘A rare genetic disorder,’ he explained. ‘You will eventually go blind.’
It was April 2011 and, aged just 20, I’d thought I was at the eye clinic for a routine check-up.
My mum Gaynor, then 48, pulled me close, knowing the fear firing through me.
You see, I’d already been born deaf.
I’d been diagnosed at 2 when Mum realised I wasn’t trying to speak.
Now the doctor
