Stepping out of the bath, I winced as I carefully changed my bandages. I was covered head to toe in open wounds, and every morning it took me an hourand-a-half to prepare my skin for the day.
It was something I had been doing all my life.
You see, I had been born with a skin condition called epidermolysis bullosa, or EB.
It’s a rare skin condition that means my skin is very fragile and doesn’t produce enough collagen 7 – resulting in blisters and scars over my whole body.
I was covered head to toe in open wounds
It’s known as butterfly skin, because of how delicate it is. It also means that I am more prone to conditions like skin cancer and have to be careful in the sun.
Growing up in Southern California, it was just
