WHO

OUR FINAL HOPE

She was born with an ultra-rare genetic disorder that causes a raft of physical and mental disabilities, but there is one trait of the disease that seems particularly cruel for Trisha Sawhney. Within a few years, the 12-year-old will lose the ability to swallow. For a schoolgirl who loves to spend her spare time cooking, and thrives on baking biscuits and cupcakes, it will be a devastating blow.

“Every time we’re eating and she

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