The Atlantic

Grieving the Future I Imagined for My Daughter

I now had two children, but was only just beginning to understand what it means to be a parent.
Source: Maria Nguyen

Just after midnight, I felt the first unmistakable contraction. I still had two days until my due date, but I knew it was time to get to the hospital. A bulldozer inside my uterus revved its engine, shifted into high gear, and rammed a baby out into the world less than two hours later. Her name would be Isobel, Izzy for short.

She weighed five pounds, three ounces, below the threshold for “normal.” This was surprising—I’d had an uneventful pregnancy, and in one of my last prenatal checkups, my obstetrician predicted that she’d weigh about seven pounds.

Did the doctor miscalculate my due date? I wondered. Should I have taken more prenatal vitamins? Eaten better, worked less?

There would be no explanation, at least not then. We moved upstairs into a recovery room with a view of the summer sun rising behind the Oakland, California, hills. In those early-morning hours, I cradled Izzy’s warm, powdery body and nestled into a feeling that everything was fine.

Five weeks later my father, a retired pediatrician, put a stethoscope to Izzy’s chest and heard a hissing noise. An echocardiogram two days after that revealed a small hole in the membrane dividing the lower chambers of her heart, causing oxygenated blood to leak back into her lungs. The cardiologist explained that her heart was working harder than it needed to, burning extra calories and keeping her small.

Odds were that

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