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    SUNDAY EDITION: Nahomie and Ronald Are The Only Ones Blessed To Have Children With Sickle Cell Disease

    SUNDAY EDITION: Nahomie and Ronald Are The Only Ones Blessed To Have Children With Sickle Cell Disease

    FromOnly One In The Room

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    SUNDAY EDITION: Nahomie and Ronald Are The Only Ones Blessed To Have Children With Sickle Cell Disease

    FromOnly One In The Room

    ratings:
    Length:
    27 minutes
    Released:
    Jan 31, 2021
    Format:
    Podcast episode

    Description

    When I was a kid, everyone in our neighborhood knew about sickle cell disease. That is...we all knew that it made Black kids sick, sick enough to go to the hospital sometimes. We knew that it was painful and that the bouts came on suddenly, and caused kids to miss school, families to miss work. The parents of kids with Sickle Cell Disease made a big deal out of every single sneeze and canceled long-awaited sleepovers during flu season, out of what felt like an overabundance of caution. Looking back, I realize that we who didn’t deal with it first hand didn’t really know that much about it. In fact, until long after I was an adult, and Prodigy from the hip-hop duo, Mobb Deep died in 2017, I don’t think I really comprehended Sickle Cell’s fatality. 
    In this very special episode of The Only One In The Room, we talk to Nahomie Acelin and Ronald Felix. Parents who have chosen to grapple with their family’s sickle cell disease in a very special way -- by making their three young sons the stars of a superhero comic book series.  
    The book is available on Amazon in English: https://www.amazon.ca/BATTLE-OTTOGATZ-SUPER-FELIX-BROTHERS/dp/1777248612
    And also in French: https://www.amazon.ca/Bataille-dOttogatz-Super-Brothers-French-ebook/dp/B08CKJSHVD
     Social medias :
     Ronald Facebook : facebook.com/ronald.felix.18
    Nahomie Facebook : facebook.com/nahomie.acelin
    Nahomie Instagram: instagram.com/nahomieacelin
    Be sure not to miss our weekly full episodes on Tuesdays and Scott Talks now released on Wednesdays by subscribing to the show wherever you listen to podcasts. 
    Join our Only One In The Room Facebook Group if you'd like to ask a question of any of our upcoming guests for this series. 
    Also visit the website www.theonlyonepod.com for the latest from our host Laura Cathcart Robbins like featured articles and more.
    We love hearing from you in the comments on iTunes and while you're there don't forget to rate us, subscribe and share the show!
    All of us at The Only One In The Room wish you safety and wellness during this challenging time.

     
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    Released:
    Jan 31, 2021
    Format:
    Podcast episode

    Titles in the series (100)

    Hosted by Laura Cathcart Robbins, a writer and a recovery thriver and survivor, Laura found herself in an all too familiar position. In September 2018, she was the only black woman in the room at Brave Magic, a famed writer’s retreat. After it was over, she wrote about her “only one” experience in The Huffington Post and comments started flooding into her DM. These comments were from people from all races, ethnicities, creeds, and nationalities who had felt “othered”. Laura beautifully interviews a person about their Only One story each episode and addresses as many of those DM’s as possible in the process. In this podcast, you’ll hear raw, vulnerable accounts from people who are, like most of us, just eager to connect. Our hope is that The Only One In The Room will inspire a change of perspective in how we all see and hear each other’s stories. We want you think twice before judging the person standing next to you at a party, in the pick-up line at school or in a crowded subway car. This is a podcast for anyone who has ever felt alone in a room full of people – which is to say, that this podcast is for everyone.