67 min listen
Families Conference 5 - 7 May 2017
FromRetina UK
ratings:
Length:
398 minutes
Released:
May 8, 2017
Format:
Podcast episode
Description
Below are recordings and copies of the presentations from the RP Fighting Blindness (now Retina UK) Families Conference, held 5th to the 7th of May 2017.
Welcome & Introduction
Inherited Retinal Dystrophies and Syndromes – Prof Andrew Webster
What can an alliance of patients and professionals achieve – Prof Graeme Black
Medical Q & A
The current clinic experience for families – Rob Henderson
The Genetic Eye Clinic experience – Theo Gale
Life beyond diagnosis – Laura Ross
How families cope and provide the right support for their children – Bo Anderson
Q & A
Translating Science into Medicine – Dr Mariya Moosajee
Science Q & A
A Family Story – Chloe Joyner & Bhavini Makwana
Pathway to support for education – Wendy Sainsbury
The Appreciative Enquiry Session (part 1)
The Appreciative Enquiry Session (part 2)
The Appreciative Enquiry Session (part 3)
The Appreciative Enquiry Session (part 4)
The Appreciative Enquiry Session (part 5)
The Appreciative Enquiry Session (part 6)
Welcome & Introduction
Inherited Retinal Dystrophies and Syndromes – Prof Andrew Webster
What can an alliance of patients and professionals achieve – Prof Graeme Black
Medical Q & A
The current clinic experience for families – Rob Henderson
The Genetic Eye Clinic experience – Theo Gale
Life beyond diagnosis – Laura Ross
How families cope and provide the right support for their children – Bo Anderson
Q & A
Translating Science into Medicine – Dr Mariya Moosajee
Science Q & A
A Family Story – Chloe Joyner & Bhavini Makwana
Pathway to support for education – Wendy Sainsbury
The Appreciative Enquiry Session (part 1)
The Appreciative Enquiry Session (part 2)
The Appreciative Enquiry Session (part 3)
The Appreciative Enquiry Session (part 4)
The Appreciative Enquiry Session (part 5)
The Appreciative Enquiry Session (part 6)
Released:
May 8, 2017
Format:
Podcast episode
Titles in the series (100)
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