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105: Brianna’s Story | Regression, Finding Purpose, and a Nurse-Turned-Medical-Mom

105: Brianna’s Story | Regression, Finding Purpose, and a Nurse-Turned-Medical-Mom

FromThe Rare Life


105: Brianna’s Story | Regression, Finding Purpose, and a Nurse-Turned-Medical-Mom

FromThe Rare Life

ratings:
Length:
51 minutes
Released:
Oct 27, 2022
Format:
Podcast episode

Description

After struggling with fertility issues for years, Brianna was overjoyed to finally be pregnant, carry the pregnancy to term, and bring home her sweet baby Isaac. As a nurse herself, she understood the risks and complications and possibilities for things that could go awry, but there were never any indications during birth or pregnancy that something was amiss with her son’s health until several months after he was born.
After months of consultations, monitoring, blame from medical staff, and confusion, Brianna and her family were finally given a diagnosis for Isaac that had the potential to change the way they planned for their future family.
In this episode, Brianna tells us what it was like to feel like to have the sense that she was just missing something around her son’s health, especially after such a “perfect” pregnancy and delivery and the difficult journey to receiving his diagnosis.
Links:
Listen to Ep. 77: Wendy’s story.
Listen to Ep 99 on family planning after having a child with medical complexities.
Donate to the podcast via Buy Me a Coffee.
Follow Brianna on Instagram.
Follow me on Instagram.
Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Access the transcript on the website here.
And if you love this podcast, please leave us a rating or review in your favorite podcast app!
Released:
Oct 27, 2022
Format:
Podcast episode

Titles in the series (100)

This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.