Qualitative Methods In Public Health Research
By Mbuso Mabuza
()
About this ebook
This book provides an introduction to ethics, research design as the most important part of the qualitative research process, the importance of theoretical frameworks and the relationship between the researcher and the researched in the qualitative research process.
The book is organised according to the following chapters: ethics and introduction to qualitative research; qualitative research study design; qualitative methods – participant observation; qualitative methods – interviews, texts, and qualitative diaries; participatory and action research; data analysis – coding, storing and managing qualitative data; analysis – interpretation; validity and presentation of findings to different audiences.
This book will be a valuable resource to health professionals, researchers, statisticians, data scientists, health programmers, policymakers, medical students, graduate and postgraduate students in public health and related disciplines.
Mbuso Mabuza
Dr Mbuso Mabuza is a highly motivated and multi-skilled international public health professional who has served in the public and private sectors of different countries. He has served as a prevention specialist at the Johns Hopkins Bloomberg School of Public Health, and as a consultant at the World Bank, among others. His mission is to improve health outcomes and to expand quality healthcare experiences amongst all groups of people and influence change and innovation.
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Qualitative Methods In Public Health Research - Mbuso Mabuza
Preface
This book provides an introduction to ethics, research design as the most important part of the qualitative research process, the importance of theoretical frameworks and the relationship between the researcher and the researched in the qualitative research process.
The book is organised according to the following chapters: ethics and introduction to qualitative research; qualitative research study design; qualitative methods – participant observation; qualitative methods – interviews, texts, and qualitative diaries; participatory and action research; data analysis – coding, storing and managing qualitative data; analysis – interpretation; validity and presentation of findings to different audiences.
This book will be a valuable resource to health professionals, researchers, statisticians, data scientists, health programmers, policymakers, medical students, graduate and postgraduate students in public health and related disciplines.
Dr Mbuso Mabuza
Global Health, Medicine and International Public Health Consultant
Chapter 1
Introduction to Ethics and Qualitative Methods in Public Health Research
There are various definitions of ethics, but all these definitions generally point towards a moral discourse which is sometime intertwined with a regulatory discourse (Ashcroft, 2003). When researchers conduct research, whether quantitative or qualitative in approach, the moral discourse should take precedence and ethical principles should be integral especially when the research deals with human subjects.
Different writers express ethical principles differently, but they are all important in carrying out qualitative research. For example, the Belmont Report of 1979 expounds the four ethical principles of autonomy, beneficence, non-maleficence, and justice (van Niekerk & Kopelman, 2005). Whereas, other writers expound just three ethical principles such as respect for persons, which includes and considers the principle of autonomy, while the second principle of beneficence considers and includes the principle of non-maleficence, and lastly the third principle of justice (Joubert & Ehrlich, 2007).
For example, there are a number of ethical issues around HIV testing for pregnant women. The principle of autonomy may be problematic and very possibly violated here, because the women may be tested for HIV because they do not have a choice, and this issue needs more attention (King et al, 2013). One has to bear in mind that autonomy from a western world construct is different from the developing world where personal choice is extremely limited (van Niekerk & Kopelman, 2005). It is hardly surprising that some researchers argue that the issue of autonomy in HIV testing for pregnant women in developing countries needs to be taken seriously, as there is serious doubt that the consent obtained from them is genuine and that there is an element of coercion in the antenatal counselling services (van Niekerk & Kopelman, 2005). The subjects such as the pregnant women may be so vulnerable such that they may fear that their healthcare would be affected if they decline to participate in the research (World Health Organisation, 2003).
When international organisations conduct research such as HIV and AIDS research in low- and middle-income countries such as in sub-Saharan Africa, the subjects may have expectations that they would benefit something out of it, only to find that there is nothing really to benefit from such research, instead it is that particular international organization that benefits by obtaining so much information about the subject matter, and this may cause mental harm to the subjects (van Niekerk & Kopelman, 2005). This shows that the principles of maleficence and beneficence are violated in this regard.
It seems as if pregnant women in low- and middle-income countries such as southern Africa, are chosen for HIV testing because they are an easy target from which the national HIV prevalence can be estimated. This is unfair, and it shows that the ethical principle of justice is also violated.
The main principles for carrying out qualitative research include the principles of autonomy, non-maleficence, beneficence, and justice now threaten to undermine the research enterprise (Pollock, 2012). The issue of HIV testing for women in low- and middle-income countries such as in southern Africa, seems to be a violation of all the ethical principles mentioned above, and therefore such research needs a distinctive approach in such settings (Ahn et al, 2003).
Given the ethical dilemma surrounding research conducted on humans in low- and middle-income countries, one is left to wonder where the core of the problem really lies and how it may be addressed. Does the problem lie with the differences in autonomy between different countries or with the lack of values among those who conduct and sponsor research? It is not that easy to put the finger on the pulse of the problem because the real cause of the problem appears to be multi-faceted, but its nucleus appears to be embedded in conflict of interest between research breakthrough and the public good. It is sometimes acknowledged that the biggest challenge is that a large part of ethics is undetectable (Joungtrakul & Allen, 2012).
It cannot be denied that research has solved a number of health issues in many parts of the world, and the emergence of new diseases and the proliferation of epidemics such as HIV and AIDS sometimes require that further research be done in order to get a better understanding for better solutions. But for further research to happen, funding is required, but the unfortunate situation is that most of those who conduct research and those who sponsor it claim to uphold the highest ethical standards, in theory or on paper, but practically, this is often not the case, as the researchers may find themselves in a tight spot due to conflict of interest (Tilley & Woodthorpe, 2011).
Sometimes, unethical research is disguised in the name of social responsibility, that even seasoned researchers may be pressurized by the sponsors’ demands to consider other ways of research which fall short of meeting the acceptable ethical standards (Kotler & Lee, 2005). It is widely recognized that some sponsors of research may have a vested interest in the results of the research, and as a result they may sway the way the research is conducted to suite their hidden objectives, and in that process inadvertently compromise the highest ethical standards (Alsmadi, 2010). Even if the set ethical regulations or ethical standards are adhered to, the concern still remains because most of the time the ethical standards are based on a western model which may not be fully applicable to a developing world’s situation.
This calls for serious reflection, as some scholars question whether the proliferation of health research in developing countries is conducted with sincerity or with hypocrisy (Kilian & Hennings, 2011). Perhaps, the problem of autonomy in different contexts and settings could