YOUR CHILD WILL NOT walk. Your child will not run. And then his heart and lungs will fail. This is the story I was left with on an otherwise sunny day in September more than a decade ago.
Yes, there was adiagnosis attached to it – Duchenne muscular dystrophy, a degenerative and fatal illness, like ALS in young boys. And yes, there were other words about treatments – mostly, the lack thereof.
But all I came back with from that afternoon was my heart’s understanding that everything my son had would be taken away from him until he was taken away from
