Family fundraising to complete bucket list for daughter with terminal illness
by Danielle Desouza
Feb 04, 2024
3 minutes
The family of a 10-year-old with a terminal condition are on an urgent mission to raise money to complete her adapted bedroom and a bucket list she has created.
Caitlin Passey was diagnosed with Juvenile Batten Disease in October 2021 – an inherited disorder which affects her nervous system, eyesight and means her “brain is forgetting to do stuff”.
Since then, her family have been trying to balance adapting their home in with making their way
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