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His baby gene editing shocked ethicists. Now he's in the lab again

He Jiankui, who shocked the world in 2018 by announcing the creation of the first gene-edited babies, tells NPR he's now working on a cure for Duchenne muscular dystrophy.
He Jiankui announced nearly five years ago that he had created the first gene-edited babies.

BEIJING — In a mostly empty coworking office on the outskirts of China's capital, a scientist whose name is etched in history is trying to stage a comeback.

He Jiankui announced nearly five years ago that he had created the first gene-edited babies, twin girls named Lulu and Nana. The news sent shockwaves around the world. There were accusations that the biophysicist had grossly violated medical ethics; some critics compared him to Dr. Frankenstein.

And he paid a price. He was swiftly detained and a Chinese court later sentenced him to three years in prison for "illegal medical practices."

About a year ago he got out, and says he took up golf. Then something unexpected happened.

"There [were] over 2,000 DMD patients, they are writing to me, text me, make phone call to me," he says.

DMD, or Duchenne muscular dystrophy, is a genetic disease that causes muscles to waste away. There is no cure yet. The patients, and their families,

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