My husband Gavin, then 39, and I watched the monitor, overcome with joy.
I was 28 and we were at my 20-week pregnancy scan. Having miscarried twins a year earlier, we were now set to welcome two precious little girls.
Then the sonographer frowned. ‘One baby appears to have spina bifida and hydrocephalus,’ she told us.
We sat there in shock as the doctor she fetched confirmed it.
‘Hydrocephalus is an excess of fluid in the brain. And spina bifida is a birth defect that