Skin Deep
Apr 04, 2022
3 minutes
By Tara Sobti.
Photography by Affa Chan
Having grown up with a visible difference she didn’t ask for, Mui Thomas could have shunned the spotlight, but instead chose to face it head on and use people’s attention as way to educate others about her extremely rare skin condition, opening frank discussions around mental health and the ups and downs in the life of someone born different.
At 29, Mui is one of 20 known people worldwide diagnosed with harlequin ichthyosis, a congenital skin condition which affects an estimated one
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