Opinion: Restoring trust in medical research among African-Americans
I've devoted my professional life to improving African-Americans' trust in the medical establishment, lately by encouraging them to take part in the @AllofUsResearch project.
When it comes to medical research, informed consent is a touchy subject among African-Americans. This essential component of research, which basically says, “I understand the work you are doing and agree to take part in it,” was long ignored for African-Americans. Many in the research community have worked tirelessly to make medical research less suspicious and more engaging for this community.
That’s why a new Harvard study of 41 “exception from informed consent” trials conducted over the past 20 years came as a huge step backward.
The Food and Drug Administration allows only to investigate therapies for
