The Paris Review

J. Stands Up

John Singer Sargent, Studies of Clasped Hands, for “Apollo and the Muses,” 1916–21, charcoal on laid paper.

My son, J., has many medical issues and severe cognitive disabilities. Yesterday, at one of the endless meetings we have about said disabilities, my husband and I were asked to describe how J. got that scar on his face. We shifted, almost in shame, as if it were someone’s fault. It wasn’t. So one of us explained how one day, J. was in so much pain from his gastroenteritis when he came home from school—this is our guess; he can’t communicate what he’s feeling or what motivates him—and we weren’t

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