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ratings:
Length:
23 minutes
Released:
May 28, 2021
Format:
Podcast episode

Description

This is Your Anxiety Toolkit - Episode 191. Well, welcome friends. How are you? How are you doing really? I want you to reflect for a second on just that... on just that question. How are you? I have not prepared for this episode. I just thought I would sit down and take some time to reflect some of, I’m sure, what I reflect on will be the first time I’ve reflected on it and not just that for reflecting with you. So what I wanted to talk with you guys about is life with a chronic illness or a disability. This is something that has shaken me a lot over the last, I would say two to three months. A lot of you have the background story with me, but if you’re new here, welcome, and I’ll tell you a quick background. In 2019, I got very sick. Through that process, I also got very... not just medically, but mentally struggled because of the symptoms that were incredibly debilitating. After pretty much every single medical test under the sun, I was diagnosed with a lesion in my brain, that they still don’t know what it is, and a disorder called postural orthostatic tachycardia syndrome. It sounds scary and it can be scary, but mostly, it’s a disorder to do with your autonomic nervous system and it basically involves lightheadedness and fainting and headaches and overall exhaustion and nausea and very, very big degree of brain fog. It can be mild and it can be very severe and extreme to the point where you can’t stand up. For months and months and months, particularly throughout COVID, I have been doing my very best to manage this disorder and this syndrome and have been doing really, really well. I’m not going to lie, I thought I’d mastered this disorder. I really did. I think there was a cocky piece of me that was like, “Oh yeah, look at me.” Once again, hard work pays off. And yes, it does. Hard work does pay off. But recently, I have been hit with another... I call it an event, another wave of POTS – POTS is the acronym for postural orthostatic tachycardia syndrome – and it has knocked me off my feet literally. Not figuratively. I think both. For those of you who don’t know, I was, two weeks ago, taking a tennis lesson, a part of my attempts to take care of myself as I have cut back immensely with work. I’ve mentioned my kids are gone back to school and my husband’s gone back to work. And so I really decided, I made a conscious decision to put my mental health first. I had started taking tennis lessons, and in the middle of my tennis lesson, it was very hot. I collapsed and had to go to the hospital. I’m sorry if this is scary for some of you. It had to be monitored and got IV bags and medications and all the things. Again, once again, I really thought this was a short-term thing. What I am reflecting on today is the realization that I’m not going to manage this. I’m not going to master it. This is something I will probably have to handle for the rest of my life. I was expecting to bounce back and I didn’t. I’ve had many days of not being able to stand. I’m not able to drive. I can drive on certain days, depending on how busy I am, but I have mostly not been able to drive. I am unable to work out. I wear these most fabulous compression socks right now, the compression socks I’m wearing. I have bright colors in stripes. I have ones with spots and reindeers and all of the things. So, that’s very fun. But no matter how much I hydrate, I’m struggling to eat and so forth. The reason I wanted to share this isn’t just to... of course, I can share. I want to share with you. But the main reason I wanted to share with you is to talk about what it’s like to wrap your head around long-term suffering. I’m really interested in this because I’ve been really mindful and watching my thoughts about this syndrome. I wonder if this resonates with you guys because a lot of you are dealing with either. A lot of you have reached out and said you have a chronic illness too, or chronic mental illness, anxiety, depression, or any of the disorders. What has
Released:
May 28, 2021
Format:
Podcast episode

Titles in the series (100)

Your Anxiety Toolkit Podcast delivers effective, compassionate, & science-based tools for anyone with Anxiety, OCD, Panic, and Depression.