Anyone who has fallen off the conveyer belt of mainstream health care and into the shadowy corners of illness knows what a dark place it is to land. Where is the infrastructure, the information, the guidance? What should you do next? Susannah Fox draws on 20 years of tracking the expert networks of patients, survivors, and caregivers who have come of age between the cracks of the health-care system to offer a way forward. Covering everything from diabetes to ALS to Moebius Syndrome to chronic disease management, Fox taps into the wisdom of these individuals, learns their ways, and fuels the rebel alliance that is building up our collective capacity for better health.
Join us for a special online-only talk as Fox discusses the issues raised in her new book Rebel Health, an action-oriented and radically hopeful field guide to the underground, patient-led revolution for better health and health care.
Fox says the next wave of health innovation will come from the front lines of this patient-led revolution. Fox identifies and describes four archetypes of this revolution: seekers, networkers, solvers and champions. She has collected tips, such as picking a proxy to help you navigate the relevant online communities or learning how to pitch new ideas to investors and partners or new treatments to the FDA. On a systemic level, this “rebel health” movement is a competitive advantage for businesses, governments and organizations to understand and leverage the power of connection among patients, survivors and caregivers.
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