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Rare Disease Day 2024: Highlighting Patient Stories and Advancements in Rare Disease Research

Rare Disease Day 2024: Highlighting Patient Stories and Advancements in Rare Disease Research

FromXtalks Life Science Podcast


Rare Disease Day 2024: Highlighting Patient Stories and Advancements in Rare Disease Research

FromXtalks Life Science Podcast

ratings:
Length:
34 minutes
Released:
Feb 28, 2024
Format:
Podcast episode

Description

In this episode, Ayesha talked about Rare Disease Day 2024, a global movement held on the last day of February each year that focuses on raising awareness about rare diseases including their impact on patients’ lives. This year, Rare Disease Day falls on February 29, the rarest day in a leap year, making it even more special.Ayesha spoke about how the Rare Disease Day campaign helps increase awareness about rare diseases, promotes research and development, supports advocacy for policies supporting patients and their families and brings together a global rare disease community.Advancements in rare disease research are leading to innovative new treatments for various rare conditions, including genetic disorders, which make up just over 70 percent of all rare diseases. Hear more about new rare disease drugs approved by the FDA in the past couple of years. Also hear about some of the latest trends in rare disease research, including innovative trial designs, patient-centric approaches, the use of cutting-edge technologies like AI and international collaborations.Read the full articles here:Rare Disease Day 2024: Highlighting Statistics and Patient StoriesNew Rare Disease Drugs and Research AdvancementsFor more life science and medical device content, visit the Xtalks Vitals homepage.Follow Us on Social MediaTwitter: @Xtalks Instagram: @Xtalks Facebook: https://www.facebook.com/Xtalks.Webinars/ LinkedIn: https://www.linkedin.com/company/xtalks-webconferences YouTube: https://www.youtube.com/c/XtalksWebinars/featured
Released:
Feb 28, 2024
Format:
Podcast episode

Titles in the series (100)

This Life Science focused podcast brings together Xtalks editorial staff to share insights into the latest B2B industry news. Xtalks connects professionals in the life science, medical device, and food industries with useful content like webinars, job opening, articles and virtual meetings.