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Learning from Long-Haulers about Rest and Radical Pacing

Learning from Long-Haulers about Rest and Radical Pacing

FromOFF-KILTER with Rebecca Vallas


Learning from Long-Haulers about Rest and Radical Pacing

FromOFF-KILTER with Rebecca Vallas

ratings:
Length:
60 minutes
Released:
Apr 7, 2023
Format:
Podcast episode

Description

This week, Off-Kilter returns to our ongoing series of conversations with social justice leaders digging into why, in the famous words of Audre Lorde, self-care is political warfare—and the role radical self-care plays in their own lives to sustain them in this work.  As we’ve explored a good bit in recent weeks as part of this series, the disability community harbors some of the greatest wisdom when it comes to radical self-care—with disabled people as modern-day oracles, as activist Alice Wong often puts it.  And to that end, for this week’s episode, Rebecca sat down with Lisa McCorkell, cofounder of the Patient Led Research Collaborative, a new organization that advocates for folks with long COVID; and Ryan Prior, a journalist-in-residence with TCF’s Disability Economic Justice Team, a board member of ME Action (which works to build awareness about a condition called ME/CFS), and author of The Long Haul.  Picking up on a conversation they had last July for the podcast about the patient advocacy revolution sparked by COVID long-haulers, they had a far-ranging conversation about what we can learn from the long COVID and ME/CFS communities when it comes to radical self-care, with a deep dive on the practice of “radical pacing”; the significance of self-care as political warfare to the chronic illness community; how patient advocacy itself is a form of self-care, particularly for folks with invisible chronic illnesses; the policy and cultural shifts needed to ensure basic practices like rest are universally available; and more. For more: Learn more about and get involved with the Patient Led Research Collaborative and ME Action Get your copy of The Long Haul Listen to the July 2022 episode of Off-Kilter on the long COVID patient advocacy revolution that comes up in the discussion Read a piece by Ryan on the World Health Organization declaring burnout an official medical diagnosis
Released:
Apr 7, 2023
Format:
Podcast episode

Titles in the series (100)

Off-Kilter is a podcast about economic liberation—and the shifts in collective consciousness it will take to set us all free. Every week, Rebecca Vallas talks with visionary leaders and organizations working to reinvigorate our shared imagination and disrupt the imbalance of power in our society. Find Off-Kilter on the Progressive Voices Network, the We Act Radio network in D.C., local radio stations across the U.S., and wherever you get your podcasts.