Christmas Poem 2023 — Low Expectations

FromThe POTScast

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Christmas Poem 2023 — Low Expectations

FromThe POTScast

ratings:

Length:

5 minutes

Released:

Nov 26, 2023

Format:

Podcast episode

Description

Happiest holidays from everyone at Standing Up to POTS!

Released:

Nov 26, 2023

Format:

Podcast episode

Titles in the series (100)

Learn about Postural Orthostatic Tachycardia Syndrome (POTS). Gain insight from other patients and from top POTS doctors. Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. If you are living with POTS, you are not alone! You can learn more about POTS by listening to our groundbreaking POTScast anywhere, anytime. Learn more at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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E0: POTScast Introduction: Meet the three members of the Standing Up to POTS Board of Directors who will serve as your guides through postural orthostatic tachycardia syndrome via The POTScast. In this short episode, meet Carly Berna, Cathy Pederson, and Jill Brook. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.orgFacebook: https://www.facebook.com/standinguptopots/Instagram: https://www.instagram.com/standinguptopots/Twitter: https://twitter.com/POTSActivistPintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. S by The POTScast
4 min listen
E4: Autonomic Nervous System 101 with Dr. Cathy Pederson: POTS is the most common form of dysautonomia, and most of its symptoms are a result of dysregulation of the autonomic nervous system. Don't know what that is or why it matters? Join us for this episode to find out how it regulates automatic bodily functions like heart rate and blood pressure! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information prov by The POTScast
40 min listen
E25: Q-Collar as a Potential Treatment for POTS, with Dr. Heather Edgell: Dr. Edgell is associate professor of kinesiology at York University in Toronto, Canada. She is researching a new potential treatment for POTS - the FDA approved Q collar (approved for other uses) that applied a small amount of pressure to the neck. Join us for this discussion of the device and the physiology that might make it an effective new treatment. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! Article discussed in this episode: Effect of a neck compression collar on cardiorespiratory and cerebrovascular function in postural orthostatic tachycardia syndrome (POTS) You can read the transcript for this episode here: https://tinyurl.com/5v8ujdjv Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTSca by The POTScast
21 min listen
E14: A Winding Road Through POTS, Chiari, Ehlers-Danlos, and Tethered Cord: Join us for a fascinating interview of Dr. Michael Goodkin, MD FACC, who is a retired general adult cardiologist and father of a POTS patient. Gain an insider's view of navigating the medical system as a parent rather than a practioner. To find a practioner doing the kinds of manipulation that Dr. Goodkin mentioned, visit https://cranialacademy.org/find-a-physician/ Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate You can read the transcript for this episode here: https://tinyurl.com/5b8vzhue Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.orgFacebook: https://www.facebook.com/standinguptopots/Instagram: https://www. by The POTScast
33 min listen
E19: Trouble sleeping? POTS could be to blame with Dr. Cathy Pederson: Sleep is so important, but elusive for 98.4% of POTS patients that Standing Up to POTS surveyed. Join us for a discussion of the research related to sleep in POTSies and tips that might help you to get a better night's sleep. If sleep problems persist, please mention it to your healthcare provider - they have tools that can help you to get a more restful sleep. Want to check out the article being discussed in this episode? Here it is: Sleep Disturbance Linked to Suicidal Ideation in Postural Orthostatic Tachycardia Syndrome You can read the transcript for this episode here: https://tinyurl.com/49vtskhe Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more by The POTScast
40 min listen
E7: POTS and Orthostatic Intolerance with Dr. Cathy Pederson: Orthostatic intolerance is related to many symptoms of POTS. Join us for an overview of what contributes to the body's inability to be upright in POTS patients and what you might try to decrease symptoms. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can access the transcript for this episode here: https://1drv.ms/w/s!Ag27qqS6ODzRmT8SNssTyik6V4Zo?e=d5Xi7D Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://ww by The POTScast
41 min listen
Trailer: Learn about The POTScast presented by Standing Up to POTS, and what we hope to accomplish for our listeners by The POTScast
1 min listen
E9: POTS Down Under (Australia) with Clinical Nurse Consultant Marie-Claire Seeley: Claire Seeley is a clinical and research nurse who works with POTS patients, and is a POTS patient herself. Join us for this fabulous interview as she discusses her personal struggles with POTS and her role in treating Australian POTS patients. She has also started the first POTS nonprofit in Australia, which you can find at https://potsfoundation.org.au. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read the transcript of this episode here: https://tinyurl.com/vnuynw2d Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standi by The POTScast
37 min listen
E1: What is Postural Orthostatic Tachycardia Syndrome (POTS)? with Dr. Cathy Pederson: POTS is a chronic invisible illness that can be quite debilitating. Join us for an overview of common POTS symptoms, triggers, and possible treatment options. We will also describe the Standing Test which is often used to diagnose POTS. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to by The POTScast
40 min listen
E2: POTS Diary with Lily, Inspiration for SUTP: Meet Lily, and listen to her journey through POTS. She was healthy and energetic until she got mono at age 10, and has been sick ever since. Lily was the inspiration for Standing Up to POTS. She's 19 now, and doing better. Her message? Never give up! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional me by The POTScast
29 min listen
E12: POTS Diary with Tanya from Utah: Meet Tanya, a mother of three who developed POTS and chronic fatigue syndrome/myalgic encephalomyelitis secondary to a mild COVID infection. Her life was turned upside when she was diagnosed with long haul syndrome. Listen to her moving story and her fight to discover her new life. You can read the transcript of this episode here: https://tinyurl.com/ym2znv3f Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUp by The POTScast
35 min listen
E17: POTS Diary with Chelsea from Ohio: Meet Chelsea, a POTS patient who's symptoms appeared out of the blue one day when she was at work at the Cleveland Clinic. Listen to her journey to diagnosis and through treatment,as she sought to find and accept her new normal. You can read the transcript for this episode here: https://tinyurl.com/9k35pyp5 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.orgFacebook: https://www.facebook.com/standinguptopots/Instagram: https://www.instagram.com/standinguptopots/Twitter: https://twitter.com/POTSActivistPintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided he by The POTScast
36 min listen
E10: POTS Diary with Mom (Stacy) and Daughter (Emily) Power Duo: A talented ballerina, Emily's life changed in her teenage years after repeated ankle injuries that eventually led to surgery and POTS. This is an absolutely enchanting story of love, strength and resilience both for Emily and her mom Stacy. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read the transcript here: tinyurl.com/vsx22wwy Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/s by The POTScast
38 min listen
E11: School Accommodations for Chronically Ill K-12 Students with Dr. Brian Yontz and Dr. Cathy Pederson: This episodes discusses the use of 504 (medical disability) and IEP (individualized educational plans) for students who need classroom accommodations. Dr. Brian Yontz speaks from the perspective of education policy and what the schools can do to help these children, while Dr. Pederson speaks as a POTS mom about her daughter's experience with K-12 schools. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read a transcript of this episode here: https://tinyurl.com/2t4yn9bz Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find o by The POTScast
42 min listen
E8: POTS Diary with Carly from Arizona: Join us to meet Carly, a member of the Standing Up to POTS Board of Directors and POTS patient herself. Carly's POTS journey hit the lowest of lows, but with the right medications and a strict exercise regime, she is now thriving. We hope you will listen to her story! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! Read the transcript here: https://tinyurl.com/9v7jd739 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.co by The POTScast
26 min listen
E5: POTS Diary of Lindsay from California: Join us to listen to Lindsay's 10+ year journey with POTS, and how she has found different ways to accomplish her goals. Her story is inspirational! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is by The POTScast
42 min listen
8th Annual Standing Up to POTS 5K/2K - in person AND virtual: Standing Up to POTS' largest fundraiser of the year is our annual 5K/2K. For the first time, we are offering both an in-person version at Wittenberg University in Springfield, Ohio on October 30, 2021 and a virtual 5K/2K anywhere at your convenience. We hope that you will join us in this event! You can register at https://www.standinguptopots.org/annual-5k by The POTScast
2 min listen
E16: POTS Diary with Rob from Alabama: Meet Rob, a POTS patient whose symptoms became problematic in his early 20s. He found that body building helped him to control his symptoms, and got him off of his POTS meds (for now). Rob shared his story with us because he wants other young men with POTS to feel less alone. You can read the transcript for this episode here: https://tinyurl.com/4h5t4kyv Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.orgFacebook: https://www.facebook.com/standinguptopots/Instagram: https://www.instagram.com/standinguptopots/Twitter: https://twitter.com/POTSActivistPintrest: https://www.pinterest.com/TheStandingUpToPOTS/ by The POTScast
40 min listen
E18: Breathing Issues in POTS and COVID Long Haulers with physical therapist Noah Greenspan: Meet Dr. Noah Greenspan who worked with many COVID patients turned long haulers in the pandemic's epicenter, New York City. Dr. Greenspan describes his work with these patients with a particular focus on breathing issues, often seen in POTS patients as well. Join us for this great episode! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read the transcript for this episode here: https://tinyurl.com/yde5e3z7 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standingu by The POTScast
42 min listen
E20: POTS Diary on the social (media) side of POTS with Kate: Meet our Director of Social Media! Kate has been integral in the growth of our social media platforms and shares what she has learned about POTS from living with her severely affected sister and working with POTS patients from around the globe. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read the transcript for this episode here: https://tinyurl.com/rzx8ejew Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.orgFacebook: https://www.facebook.com/standinguptopots/Instagram: htt by The POTScast
21 min listen
E3: Occupational Therapy Tips for POTS Patients with occupational therapist Joanna Behm: Meet Joanna Behm, a POTS patient and occupational therapist, who shares some great tips to improve the quality of life for people with POTS and hypermobile disorders. We think that you will walk away from this episode with a new idea to try! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not inte by The POTScast
38 min listen
E6: Hypermobility Disorders and Chronic Pain with Dr. Linda Bluestein: Please join us for an interview with Dr. Linda Bluestein, an anesthesiologist and pain specialist who is a hypermobility patient herself. This is a great conversation about pain management and living with Ehlers-Danlos syndrome and other hypermobility disorders. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! You can read the transcript here: https://1drv.ms/w/s!Ag27qqS6ODzRmTyHDQfgjNzcwuUO?e=rKAwMJ Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.face by The POTScast
42 min listen
E26: POTS Diary with Keeya from Minnesota on Blogs, Dogs, Ticks and Humor: Keeya suffers from mast cell activation syndrome, POTS, and EDS. She appeared on EPSN with a story about her participation in a national dog competition with accommodations for her illness. It's a great story. Find out how her symptoms have gone into remission! Her blog is: hellsbellsandmastcells.com You can read the trancript for this episode here: https://tinyurl.com/esuacbve Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/ by The POTScast
46 min listen
E15: Quality of Life in POTS with Dr. Cathy Pederson: Quality of life can be negatively impacted by chronic illnesses like POTS. Please join us for an honest discussion of quality of life based on the scientific literature and personal experience. Trigger warning: this episode gets heavy at times, and discusses suicide as related to poor quality of life in POTS patients. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! Links referenced in this episode: Health-Related Quality of Life and Suicide Risk in Postural Tachycardia Syndrome CDC Healthy Days Questionnaire Standing Up to POTS page on Suicide Prevention You can read the transcript for this episode here: https://tinyurl.com/3ps5jzws Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support by The POTScast
52 min listen
E24: POTS Diary with POTSpouse Mike B. from California: We hope you enjoy this charming episode where Jill interviews her husband, Mike, about his experience dealing with her chronic illness. His support and innovation to make her life easier and more productive is truly inspiring! You can read the transcript for this episode here: https://tinyurl.com/fczt2ura Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The by The POTScast
41 min listen
E21: Mast Cells Causing Mayhem with Doctor of Naturopathy Beth O'Hara: This is the best explanation we have heard about mast cells, mast cell activation syndrome, and how they relate to POTS and the hypermobile form of Ehlers-Danlos Syndrome. A POTS, EDS, and MCAS patient herself, Beth O'Hara actively seeks understanding and treatment of issues related to complex medical issues like mast cell activation syndrome. What a great resource! You can find her website at www.mastcell360.com You can read the transcript for this episode here: https://tinyurl.com/4uprh3ns Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.face by The POTScast
51 min listen
E32: POTS Diary with Sarah from Minnesota: Sarah is a POTS patient and mother of three who has struggled to balance her physical struggles with the lifestyle of raising children. Not wanting others to feel alone as she did early in her journey, Sarah started a blog and social media campaign called Survive Your Struggle. She shares her struggles - being wheelchair bound for a time, and her journey back to a more balanced life in this episode of The POTScast! You can read the transcript for this episode here: https://tinyurl.com/mv7amjvx Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ by The POTScast
36 min listen
E22: POTS Diary with Dysautonomia Support Network President Brooke O'Shea: Brooke O'Shea is the current President of the Dysautonomia Support Network, and mother of two daughters with Ehlers-Danlos Syndrome and one with POTS. This is a really honest episode of trials and tribulations, silver linings and advocacy. We hope you enjoy it! Check out the materials on the DSN website: https://www.dysautonomiasupport.org/ You can read the transcript for this episode here: https://tinyurl.com/j766wbm5 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standi by The POTScast
46 min listen
E37: Relationship between POTS and Ehlers-Danlos Syndrome (EDS) with Dr. Cathy Pederson: In this episode, Jill and Dr. Cathy Pederson discuss the ins and outs of Ehlers-Danlos Syndrome (EDS), Type III (hypermobile) and its relevance for many POTS patients. Many POTS patients also have EDS, a genetic mutation of one or more genes that code for the protein collagen. How can that defect cause so much havoc? To follow along with the diagnosis criteria, please check out this page: https://www.standinguptopots.org/resources/pots-causes You can read the transcript for this episode here: https://tinyurl.com/2p928zz3 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standingup by The POTScast
46 min listen
E28: POTS Diary with Henry from the United Kingdom: Meet Henry from the UK, who suffers from POTS, EDS, and vestibular migraines. These disorders have greatly impacted his quality of life, especially in the 30 years prior to receiving a proper diagnosis. He is upbeat as he describes his experience with chronic illness, particularly as a male. You can read the transcript for this episode here: https://tinyurl.com/2p95ty97 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and would like to help defray the costs associated with creating these episodes, please donate at: https://www.standinguptopots.org/donate Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://w by The POTScast
50 min listen

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Your vote can raise awareness and funds - with (the very strong) Dr. Tania Dempsey: Dr. Tania Dempsey shares her passion (and some tips) for bodybuilding, because she has been nominated to be on the cover of Muscle and Fitness Hers magazine! If she is voted to be on the cover, it will raise awareness of complex conditions like POTS/MCAS/hypermobility spectrum disorder, AND Dr. Dempsey would donate the $20,000 prize to the documentary in progress about the Triad. You can vote here (and see how strong she is) through Thursday, May 16th, 2024. by The POTScast
24 min listen
E205: Dr. Julie Maamari on perioperative considerations for complex patients: Dr. Julie Hubbard Maamari is a Perioperative Clinical Pharmacy Specialist who helps patients before, during and after surgery by making sure they get the best medications for their needs. She has helped many complex patients, including those with POTS, MCAS and other hypersensitive or allergic conditions, and she has authored peer-reviewed articles. Dr. Maamari discusses what patients and their doctors can do to prevent mast cell reactions and have the safest, most comfortable outcomes. The free patient guide by The Mast Cell Disease Society, with worksheets for emergency room response plan, list of medications to favor or avoid with MCAS, and surgical medication plan can be found here. Dr. Hubbard Maamari's published article on perioperative consideration in patients with MCAS can be found here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so by The POTScast
35 min listen
E204: Maddie can walk again! A POTS Diary follow-up: In this episode we check in on Maddie from episode 83, and hear how she is doing, including how she regained the ability to walk again! You can read the transcript for this episode here: https://tinyurl.com/potscast204 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis by The POTScast
23 min listen
E203:Humor in Chronic Illness with DoodleThru Creators Mike & Jill Brook: Sometimes we have to laugh so we don't cry. In this episode, cartoonists and married couple Mike and Jill Brook describe what made them create DoodleThru.com, how it helped them cope, and remark at the endless supply of absurdities that are available to chronic illness humorists. You can see their cartoons at https://doodlethru.com/. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.c by The POTScast
31 min listen
E202: Dr. Theo Theoharides on mast cells driving dysautonomia and much more - Mast Cell Matters: Dr. Theoharides is among the world's top mast cell researchers and speaks with Dr. Dempsey about his recent article reviewing how mast cells may drive dysautonomia and vice verse. They also cover a range of topics from mast cells' diversity to their role in autism, most effective mast cell stabilizers and much more. This episode is packed with advanced mast cell information. Dr. Theoharides has a website here and his supplements can be found here. You can learn more about Dr. Dempsey and her practice here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.stan by The POTScast
62 min listen
E201:Allie: In this episode we meet Allie, a student at Purdue University who, since getting POTS, has started introducing herself to one new stranger per day. How cool is that?! If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health profes by The POTScast
32 min listen
E200: Dr. Leticia Soares, PhD on female reproductive health concerns associated with long COVID, POTS, EDS, ME/CFS: Dr. Leticia Soares is a research biologist who, before COVID, focused on infectious disease in birds. Now she serves on the leadership team of the Patient-Led Research Collective, conducting and publishing research to help improve treatment for people with Long COVID. Dr. Soares recently published a review article about female reproductive health issues associated with long COVID, ME/CFS, POTS, hEDS, and in this episode she discusses the main findings, challenges, some tips for fellow patients, and future research priorities. You can follow Dr. Soares at @leticiasaurus on X. You can read the transcript for this episode here: https://tinyurl.com/potscast200 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/dona by The POTScast
35 min listen
199: Listener Q&A with Dr. Tania Dempsey — Mast Cell Matters: Dr. Dempsey answers questions about MCAS and depression/anxiety/fatigue/brain fog; physical triggers; Kounis Syndrome; whether it's worth it to allow "small" flares in the name of pizza or other small joys; treatments such as stenting for venous compression; how long to try each antihistamine; and much more. More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com by The POTScast
51 min listen
E198:POTS Diaries with Arianna from Indiana: Arianna was an athlete until POTS and has now developed a large following as a social media influencer. She's sharing her POTS journey with her audience, too! You can follow her here on TikTok or follow her here on Instagram. You can read the transcript for this episode here: https://tinyurl.com/potscast198 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The informa by The POTScast
42 min listen
E197:Dr. David Kaufman on ME/CFS, MCAS, POTS and complex disorders - Mast Cell Matters Series: Dr. David Kaufman is renowned for working with the most complex patients and for his podcast on Patreon, Unraveled: Understanding Medical Complexity. He and Dr. Dempsey discuss the role of MCAS in ME/CFS and other complex disorders and how he starts unraveling these complex clusters of conditions. You can learn more about Dr. Kaufman and his practice here. You can learn more about Dr. Dempsey and her practice here. You can read the transcript for this episode here: https://tinyurl.com/potscast197 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots by The POTScast
55 min listen
E196:Jolie is Miss Chattanooga, spreading awareness of POTS at the Miss Tennesee Pageant: Jolie was first featured in episode 160, and she's back to talk about how she's doing, how she successfully manages her POTS, and some big news: She was chosen to be Miss Chattanooga, TN! In this role she is helping raise awareness of POTS and in the next few days (March, 2024) she'll be competing in the Miss Tennesee Pageant. Thanks to Jolie for using her platform and growing notoriety to help our community! You can find Jolie on TikTok or Instagram at @JolieMayes. You can read the transcript of this episode here: https://tinyurl.com/potscast196 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Chec by The POTScast
22 min listen
E195: Kelly from Maryland: Meet Kelly from Maryland, a driven student who loves to read, plays the guitar and has plans to pursue neuroscience so she can study the intersection between the brain, one's mindset and POTS. You can read the transcript for this episode here: http://tinyurl.com/potscast195 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as profess by The POTScast
37 min listen
E194: Podcasts as a Form of Social Support with Dr. Melanie Finney and Kate Pederson: POTScast listeners took a survey on podcasts and social support. Here are the results - podcasts can help individuals feel less socially isolated and provide them with informational and emotional support. Parasocial relationships between podcast listeners and hosts are also important. You can read the transcript for this episode here: http://tinyurl.com/potscast194 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTS by The POTScast
25 min listen
E193: Psychological Experiences of POTS Patients with Dr. Alissa Sheldon: Learn about the psychological experiences of POTS patients in this episode with Dr. Alissa Sheldon. Understand how to trust your symptoms and navigate through life despite challenges. You can read the transcript for this episode here: http://tinyurl.com/potscast193 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided her by The POTScast
41 min listen
E192: POTS Diary with Erin from Connecticut, who loves to write: Erin is working on her Master's degree in English, and loves to write. She's written stories about her journey with both lupus and POTS, which started in her late teens and early 20s, but her first love is fiction. You can find her stories at https://vocal.media/fiction/waiting-room-lv3wu40jdv and https://www.artwifemag.com/short-stories/chinchilly If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pintere by The POTScast
39 min listen
E191: Dr. Jeffrey Boris on MCAS, POTS, hypermobility and pediatric cardiology as part of the Mast Cell Matters Series with Dr. Tania Dempsey: Dr. Dempsey interviews pediatric cardiologist Dr. Jeffrey Boris about the Triad (MCAS, POTS and hypermobility syndromes) in his pediatric population. As an avid researcher and data analyst, Dr. Boris is always a wealth of knowledge on latest findings and yet-unpublished trends and hypotheses. The doctors also exchange interesting observations about MCAS and cholesterol, PCOS, and much more. You can learn more about Dr. Boris and his practice here. You can learn more about Dr. Dempsey and her practice here. You can read the transcript for this episode here: http://tinyurl.com/potscast191 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or by The POTScast
57 min listen
E190: Possible Causes of Brain Fog, Dizziness and Nausea in POTS with Dr. Cathy Pederson: Attention POTS patients and those who care about them: Ever wondered what exactly is happening in your body when you experience common POTS symptoms like fainting, nausea, dizziness or brain fog? Tune in to this episode with Dr. Cathy Pederson to unpack the potential causes of these symptoms. You can read the transcript for this episode here: http://tinyurl.com/potscast190 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twit by The POTScast
44 min listen
E189: Functional Medicine Nutrition with Megan Barnett: This is a conversation between Jill Brook and Megan Barnett discussing the relationship between nutrition, gut health, and complex health conditions like POTS and mast cell disorders. They delve into topics like food sensitivities, the importance of micronutrients, and the role of functional medicine in managing these conditions. Megan's website is: https://bioloungepdx.com You can read the transcript for this episode here: http://tinyurl.com/potscast189 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www. by The POTScast
50 min listen
E188: POTS Diary with Erica from California, an actress and dancer: Erica really can't remember life without POTS symptoms and anxiety was blamed for many years. She currently attends school and lives bicoastally as she pursues a career as an actress and dancer. Her diagnosis brought relief, and learning how to control her symptoms have helped her follow her dreams. You can read the transcript for this episode here: http://tinyurl.com/potscast188 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSAct by The POTScast
27 min listen
E187: Dr. Anjali Agarwal, Consulting Physiotherapist and Awareness Beacon in India: Dr. Anjali Agarwal - consulting physiotherapist trained in UK, located in India, and consulting via telemed around the world - is a wealth of information on POTS and related conditions, describing how "everything is connected", which also presents many treatment opportunities. She shares numerous lifestyle strategies to manage POTS/dysautonomia, MCAS, hypermobility and related conditions, and she also shares her international perspective. You can follow Dr. Anjali on Twitter, Instagram, or Facebook. You can read the transcript for this episode here: http://tinyurl.com/potscast187 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more abou by The POTScast
42 min listen
E186:Behind the Scenes of The Triad Film on POTS/MCAS/hypermobility: A Crossover Episode: We have the entire medical/production team of 5 physician/researchers to give us an update and behind-the-scenes look at the documentary they are making about the trifecta of dysautonomia/POTS, MCAS and hypermobility spectrum disorders. We hear from doctors Tania Dempsey, Larry Afrin, Linda Bluestein, Lawrence Kinsella and Leonard Weinstock, along with patient Jill Brook, to hear how filming is going so far and how we can all help support the film. This is a crossover episode with Bendy Bodies with Hypermobility MD, Dr. Linda Bluestein. You can learn more about the documentary at MCASfund.org. Chapters 00:00 Introduction 00:37 Creating Awareness and Increasing Treatment Options 03:09 The Birth of the Documentary Project 05:20 Filming in New York 07:19 Filming in St. Louis 10:32 The Motivation to Work with Complex Patients 15:49 The Journey of Recognizing MCAS 17:34 The Impact of MCAS Treatment by The POTScast
53 min listen
E185: POTS Diary with POTSpouse Tim and Leah: Despite Leah being largely bedbound, Tim and Leah's relationship is as strong as ever. How do they balance illness, household chores, and raising their children? Find out in this heartwarming episode. You can read the transcript for this episode here: http://tinyurl.com/potscast185 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not in by The POTScast
50 min listen
E184: Breast Implant Illness and MCAS with Breast Surgeon Eva Nagy, MD as part of the Mast Cell Matters Series: Dr. Tania Dempsey interviews Dr. Eva Nagy, a breast surgeon experienced in all sorts of breast surgeries, who has developed special interest and skill in treating breast implant illness (BII), which she believes can be related to mast cell activation syndrome (MCAS). Dr. Nagy describes BII, how she removes problem implants, and the effects this can have on a wide range of symptoms. You can learn more about Dr. Nagy and her practice here. You can read the transcript for this episode here: http://tinyurl.com/potscast184 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out by The POTScast
75 min listen
E183: Nutrient Deficiencies in POTS with Nutritionist Jill Brook: In this episode, Nutritionist Jill Brook reviews the research findings on nutrient deficiencies in POTS, shares some tips, and directs listeners to a great resource for finding which lab tests are recommended by our Medical Advisory Board to determine whether nutrient imbalances may be a factor for you. With Jill’s husband as this week’s interviewer, we also learn about some nutrient experiments and misadventures in her own POTS journey. You can read the transcript for this episode here: http://tinyurl.com/potscast183 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Faceb by The POTScast
27 min listen
E182: Diary with Quinton, a fitness enthusiast and Long COVID POTS patient: Quinton loves to work out and research Long COVID. About two weeks after recovering from a mild COVID infection, he developed POTS and found himself nearly bedridden. He has slowly worked his way back toward being functional, although he still has significant limitations. You can read the transcript for this episode here: http://tinyurl.com/potscast182 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: http by The POTScast
36 min listen
E181: Venous Insufficiency in POTS with Dr. Alexis Cutchins: Dr. Alexis Cutchins wrote a comprehensive review of POTS, including less-known treatments like oral contraceptives, gluten-free diets, and diosmin. Join her in thinking about promoting good blood flow that might decrease other POTS symptoms. Dr. Cutchin's review paper on POTS:https://www.uscjournal.com/articles/narrative-review-postural-orthostatic-tachycardia-syndrome-associated-conditions-and You can read the transcript for this episode here: https://tinyurl.com/potscast181 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ by The POTScast
41 min listen
E180: Diary with Emily, an urgent care medical assistant who developed POTS: Emily was working as a medical assistant when she developed POTS. While she was aware of POTS, receiving a proper diagnosis still took 7 or 8 months. Many practitioners were dismissive of her symptoms, leading to a delay in treatment. You can read the transcript for this episode here: https://tinyurl.com/potscast180 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpT by The POTScast
23 min listen
E179: Diary with Leah, a bedbound mom who developed POTS after acute illness: Leah's life changed after her family got sick in December 2019. They rebounded in a couple of weeks, but she did not. She was diagnosed with POTS quickly, but remains largely bedbound and has had to shift her perspective to use her energy wisely for her family. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided her by The POTScast
31 min listen
E178: Psychiatric Manifestations of MCAS with Dr. Janet Settle as part of the Mast Cell Matters series: Dr. Settle is a psychiatrist who believes that mast cell activation is responsible for some symptoms of anxiety, depression, bipolar disorder type II and others. She treats MCAS as a way to stabilize both mast cells and their emotional state. You can read the transcript for this episode here: https://tinyurl.com/potscast178 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https by The POTScast
45 min listen
E177: Gender Matters in Perceived Burdensomeness in POTS Patients with Dr. Cathy Pederson: Perceived burdensomeness, feeling like a burden to friends and family, is common in POTS patients. This feeling can be a predictor of suicidal thinking, particularly in men. We can change feelings of burdensomeness - find out how in this episode! You can read the transcript for this episode here: https://tinyurl.com/potscast177 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pi by The POTScast
44 min listen

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Christmas Poem 2023 — Low Expectations

Christmas Poem 2023 — Low Expectations

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