72 min listen
The Rare Life (feat. Madeline Cheney) S5E47
FromThe Autism Dad
ratings:
Length:
29 minutes
Released:
Nov 1, 2022
Format:
Podcast episode
Description
In this week's episode, I talk with Madeline Cheney from The Rare Life Podcast, where she shares her family's journey raising two amazing kids, one with very rare conditions. We have a conversation about what life is like for her family, some of the challenges they face, and how she's helping other families dealing with similar things.
Guest Bio:
Madeline Cheney is the host/creator of The Rare Life, a well-loved podcast for parents of children with rare conditions. She finds huge fulfillment in connecting with this community of parents in this way. Her experiences with her medically-complex son Kimball inspired the podcast. Kimball is a Buzz-lightyear loving four-year-old with a rare form of dwarfism and deaf-blindness, among other aspects of his rare syndrome. Madeline and Kimball live in Utah with his dad Juston and big sister Wendy where they enjoy camping as a family.
Connect with Madeline on Instagram
Listen to The Rare Life Podcast
Important Links:
My Autism Parenting Support Forum: Click Here
Host Bio:
Rob Gorski is a single Dad to three amazing autistic boys and Found and CEO of The Autism Dad, LLC. Multiple award-winning blogger, podcaster, content creator, digital marketer, social media influencer, and respected public figure for well over a decade.
Connect with Rob Gorski: https://listen.theautismdad.com
Mentioned in this episode:
Learn More About Bened Life
Bened Life supports a neuroinclusive community with education and science-backed probiotics that promote mental and physical health. Bened Life prides itself on hiring neurodivergent staff that helps to run multiple facets of their business. Their medical probiotic, Neuralli, featuring the probiotic PS128, has already helped thousands of neurotypical and neurodivergent people worldwide. Learn more by going to benedlife.com. Use the code "theautismdad" at checkout for 20% off your first order.
Visit Bened Life
Guest Bio:
Madeline Cheney is the host/creator of The Rare Life, a well-loved podcast for parents of children with rare conditions. She finds huge fulfillment in connecting with this community of parents in this way. Her experiences with her medically-complex son Kimball inspired the podcast. Kimball is a Buzz-lightyear loving four-year-old with a rare form of dwarfism and deaf-blindness, among other aspects of his rare syndrome. Madeline and Kimball live in Utah with his dad Juston and big sister Wendy where they enjoy camping as a family.
Connect with Madeline on Instagram
Listen to The Rare Life Podcast
Important Links:
My Autism Parenting Support Forum: Click Here
Host Bio:
Rob Gorski is a single Dad to three amazing autistic boys and Found and CEO of The Autism Dad, LLC. Multiple award-winning blogger, podcaster, content creator, digital marketer, social media influencer, and respected public figure for well over a decade.
Connect with Rob Gorski: https://listen.theautismdad.com
Mentioned in this episode:
Learn More About Bened Life
Bened Life supports a neuroinclusive community with education and science-backed probiotics that promote mental and physical health. Bened Life prides itself on hiring neurodivergent staff that helps to run multiple facets of their business. Their medical probiotic, Neuralli, featuring the probiotic PS128, has already helped thousands of neurotypical and neurodivergent people worldwide. Learn more by going to benedlife.com. Use the code "theautismdad" at checkout for 20% off your first order.
Visit Bened Life
Released:
Nov 1, 2022
Format:
Podcast episode
Titles in the series (100)
Living with Rare Disease (feat. Lindsay Fogarty) S2E3: I speak with my good friend and fellow Autism parent, Lindsay Fogarty. She's an Autism, Rare Disease and patient advocate, as well as, a blogger and volunteer lobbyist. We talk about why she's called "The Rare Disease Mom", what her daily life is like, what she's doing to raise awareness and help others. This is a very powerful, uplifting and inspirational conversation. Go grab a snack and enjoy the great conversation. ☺ Lindsay can be found at http://therarediseasemom.com/ (therarediseasemom.com)twitter @rarediseasemomhttp://bit.ly/2ZPjjAx (Support This Podcast)You can find me: https://my.captivate.fm/theautismdad.com (theautismdad.com)Twitter: https://twitter.com/theautismdad (https://twitter.com/theautismdad)This episode is sponsored by Mightier. Mightier is an amazing program out of Harvard Medical and Boston Children’s. It uses video games to teach kids to emotionally self-regulate. Visit http://bit.ly/39HzS5Z (theautismdad.co by The Autism Dad