In this Complex Care Journal Club podcast episode, Dr. Nancy Murphy discusses the piloting of a home monitoring application for families of children with medical complexity and the associations between the level of parental concern and clinical status changes identified in secondary data analysis. She describes the key role families played in guiding the study, implications for clinical practice, and next steps from this work.

SPEAKERS
Nancy Murphy, MD
Professor of Pediatrics and Chief, Division of Pediatric Complex Care
Department of Pediatrics, University of Utah School of Medicine

HOST
Emily Goodwin, MD
General Academic Pediatrics/Beacon Program
Children’s Mercy Kansas City Broadway
Associate Director of Medical Student Education
Clinical Assistant Professor of Pediatrics
University of Missouri Kansas City School of Medicine
Clinical Assistant Professor of Pediatrics
Kansas University Medical Center

DATES
Initial publication: June 28, 2023.

CITATION
Murphy N, Goodwin E. Trust Their Gut: Family Level of Concern and Clinical Changes in Children with Medical Complexity. 06/2023. OPENPediatrics. Online Podcast. Links: https://youtu.be/4RJAzlOnDo0, https://soundcloud.com/openpediatrics/trust-their-gut-family-level-of-concern-and-clinical-changes-in-children-with-medical-complexity.

ARTICLES REFERENCED
Nkoy F, Stone B, Sheng X, Murphy N. High Parental Concern in Children With Medical Complexity: An Early Indicator of Illness. Hosp Pediatr. 2023;13(3):250-257. doi:10.1542/hpeds.2022-006876

TRANSCRIPT
https://op-docebo-images.s3.amazonaws.com/Transcripts/Trust+Their+Gut+-+Family+Level+of+Concern+and+Clinical+Changes+in+Children+with+Medical+Complexity_Murphy_062023.pdf

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