20 min listen
Free for Life: The Story of n-Lorem Foundation
FromVital Science
ratings:
Length:
31 minutes
Released:
Apr 18, 2023
Format:
Podcast episode
Description
When patients face the diagnosis of a rare disease, they face a costly, uphill battle to develop a treatment for their condition… that is, if they ever do. Dr. Stanley Crooke is aiming to change that. As the CEO of n-Lorem Foundation, his mission is to provide personalized treatments to ultra-rare disease patients for free as long as they live, no questions asked. Thanks to his humility, coupled with the generosity of other individuals and companies, ultra-rare disease patients have a renewed hope to get the treatments others may not be able to provide. Join Dr. Crooke as he reflects on his humble beginnings at Ionis, the approach n-Lorem takes to developing drugs for ultra-rare diseases, and what the future holds for research in this area.Show Notes
n-lorem Foundation
Charles River - Rare Disease
Vital Science S4, E01 Project ALS: Fueled by Love
2021 Rare Disease Trailblazers
BioSpace: n-Lorem Foundation Preps First Doses to Treat Ultra-Rate Disease Patients for Free
Ionis Pharmaceuticals
Nature Medicine: Antisense oligonucleotide silencing of FUS expression as a therapeutic approach in amyotrophic lateral sclerosis
n-lorem Foundation
Charles River - Rare Disease
Vital Science S4, E01 Project ALS: Fueled by Love
2021 Rare Disease Trailblazers
BioSpace: n-Lorem Foundation Preps First Doses to Treat Ultra-Rate Disease Patients for Free
Ionis Pharmaceuticals
Nature Medicine: Antisense oligonucleotide silencing of FUS expression as a therapeutic approach in amyotrophic lateral sclerosis
Released:
Apr 18, 2023
Format:
Podcast episode
Titles in the series (48)
Infectious Disease and The Rise of Vaccines: Dr. Sarah Gould explains how infectious disease spurred the discovery and subsequent evolution of vaccines. by Vital Science