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#91 Ellen Matloff on Direct-To-Consumer Genetic Testing

#91 Ellen Matloff on Direct-To-Consumer Genetic Testing

FromDNA Today: A Genetics Podcast


#91 Ellen Matloff on Direct-To-Consumer Genetic Testing

FromDNA Today: A Genetics Podcast

ratings:
Length:
30 minutes
Released:
Oct 5, 2018
Format:
Podcast episode

Description

Ellen Matloff is the President and CEO of My Gene Counsel. Ellen is the founder and former director of the Cancer Genetic Counseling Program at Yale School of Medicine.Ellen has authored more than 50 scientific publications in the field, is an established educator, lecturer and media spokesperson and has received national awards for her ongoing patient advocacy efforts. She is an outspoken patient advocate in many areas, most notably as a plaintiff in the 2013 BRCA gene patent case that went before the Supreme Court. This decision has led to drastically lower prices of genetic testing, making it possible for more patients to afford this technology. Ellen is a Forbes.com contributor in the area of genetic counseling, testing, and digital health.As genetic testing became more common and also more complex, she has served as the senior author on several publications since 2010, all documenting errors in the interpretation of genetic test results, from all over the US and Canada. From these experiences, Ellen created My Gene Counsel and its associated digital tools that can be used in parallel with genetic testing to help ensure that results are used accurately and effectively. These tools are scalable, affordable, are available to the consumer immediately, and on their own device, and - importantly - when your genetic test results are reclassified, or medical management recommendations change, you receive a text message or email.Disclaimer, I (host Kira Dineen) also work for Ellen at My Gene Counsel as the Communications Lead.On This Episode We Discuss:Defining direct-to-consumer (DTC) testsTypes are available to consumersDifference between medical grade and DTC genetic testsAccuracy of DTC genetic testsWhat to know before choosing a DTC testExamples of when a DTC test may be more appropriate than a medical grade test and vice versaWhy healthcare providers can’t afford to ignore DTC anymorePotential implications of sending a sample to a DTC companyBenefits of signing up for My Gene CounselCheck out My Gene Counsel’s website, Twitter, Facebook and LinkedIn pages for more information.Stay tuned for the next new episode of DNA Today on October 19th. New episodes are released on the first and third Fridays of the month. See what else I am up to on Twitter, Instagram, Facebook and iTunes. Questions/inquiries can be sent to Kira at info@DNApodcast.com.
Released:
Oct 5, 2018
Format:
Podcast episode

Titles in the series (100)

Discover New Advances in the world of genetics, from technology like CRISPR to rare diseases to new research. For over a decade, multi-award winning podcast "DNA Today" has brought you the voices of leaders in genetics. Host Kira Dineen brings her genetics expertise to interview geneticists, genetic counselors, patient advocates, biotech leaders, researchers, and more. ***Best 2020 and 2021 Science and Medicine Podcast Award Winner*** Learn more (and stream all 180+ episodes) at DNApodcast.com. You can contact the show at info@DNApodcast.com.