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#67 Daniel DeFabio on Disorder: The Rare Disease Film Festival

#67 Daniel DeFabio on Disorder: The Rare Disease Film Festival

FromDNA Today: A Genetics Podcast


#67 Daniel DeFabio on Disorder: The Rare Disease Film Festival

FromDNA Today: A Genetics Podcast

ratings:
Length:
29 minutes
Released:
Sep 8, 2017
Format:
Podcast episode

Description

Daniel DeFabio is co-director of Disorder: The Rare Disease Film Festival. This event is a first of its kind showcasing a myriad of films from around the world that address the challenges of life with a rare disease. The film festival has support from some of the leading organizations in rare disease advocacy -- NORD, Global Genes, The Mighty, RDUF and MassBio. The event is going to be in Boston, MA on October 2nd & 3rd, 2017.
Daniel has also written about the rare disorder Menkes Disease for The Mighty. One of these stories won the 2015 Rare Patient Story Award from Global Genes. He made a 12 minute documentary on Menkes Syndrome narrated by Oscar nominee Mary McDonnell. In 2008 he founded the Ballston Spa Film Festival. He was a pioneer of original content online (now called web series) and co-wrote and co-produced the internet's first animated series. He has created videos and motion graphics for American Cinematographer, PBS, bio-techs, hospitals, TNT's “The Closer” and HBO's “Curb Your Enthusiasm”.
To keep updated with Disorder: The Rare Disease Film Festival, like them on Facebook.
Released:
Sep 8, 2017
Format:
Podcast episode

Titles in the series (100)

Discover New Advances in the world of genetics, from technology like CRISPR to rare diseases to new research. For over a decade, multi-award winning podcast "DNA Today" has brought you the voices of leaders in genetics. Host Kira Dineen brings her genetics expertise to interview geneticists, genetic counselors, patient advocates, biotech leaders, researchers, and more. ***Best 2020 and 2021 Science and Medicine Podcast Award Winner*** Learn more (and stream all 180+ episodes) at DNApodcast.com. You can contact the show at info@DNApodcast.com.