30 min listen
#41 Rare Disease Day 2016
ratings:
Length:
27 minutes
Released:
Feb 29, 2016
Format:
Podcast episode
Description
February 29th is the rarest day of the year and that means it's Rare Disease Day! Throughout the world NORD (The National Organization of Rare Diseases) has hosted Rare Disease Day events. I attended the Connecticut Rare Disease Day at the State House in Hartford and interviewed a few of the presenters including Jackie and Eloise Stager, founders of JaxLegacy, John Hopper, the director of the Fibrolamellar Cancer Foundation and Maddie Shaw, leader of Maddie's Herd. Join the rare disease tweetchat March 1st, 2016 at 1pm ET using the hashtag, #abcDRBchat.
Released:
Feb 29, 2016
Format:
Podcast episode
Titles in the series (100)
#6 Jackson Laboratories for Genomic Medicine Opening: The Grand Opening of Jackson Laboratory in Farmington, CT was this past Wednesday, October 8th. In this episode I discuss the presentations and the facility itself from the conference by DNA Today: A Genetics Podcast