Living with Nf & Story of Survival

By Hana Redding

You never know how something that you think is so small can turn into chapters of the unknown. My parents thought they had a healthy daughter because I was born with ten fingers and ten toes, but they were dead wrong because on one particular day, when Mom was getting me dressed, she noticed small spots appearing all over my body.

Mom became so concerned she rushed me to childrens hospital to be seen by the doctor. I was seen by the doctor right away. As he began to exam me, he had this strange look on his face, like what he had seen on my body was nothing like hed seen before.

My mom began to cry again while asking the doctor, Is my daughter going to be okay?

His response was Im not sure, but I think she might have NF, a rare genetic disorder. Some tests have to be run. Come back in one week, and we will know exactly whats going on.

Upon arriving home, Dad was sitting on the couch and said, Whats up, bossy? It was a nickname my dad gave my mom.

Her response in a loud tone of voice was Our daughter Hana might have NF.

Dads response was What? Huh, whats that?

Mom began to yell, You should have been there! Youre never around!

All hell was about to break loose. I ran upstairs to my bedroom and slammed my door, still hearing my parents arguing back and forth.

• Language: English
• Publisher: Xlibris US
• Release date: Jul 23, 2016
• ISBN: 9781524524920

Hana Redding

Hana Redding is a Philadelphia native, and by sharing her story through her debut book, Living with NF, she hopes to inspire many people. In 2012 Redding poem to be great was published in Stars of Our Hearts. On her spare time, she enjoys spending time with family, traveling, and dancing.

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Copyright © 2016 by Hana Redding.

All rights reserved. No part of this book may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording, or by any information storage and retrieval system, without permission in writing from the copyright owner.

Any people depicted in stock imagery provided by Thinkstock are models, and such images are being used for illustrative purposes only.

Certain stock imagery © Thinkstock.

Rev. date: 07/13/2016

Xlibris

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CONTENTS

Acknowledgments

Introduction

Chapter 1 Discover of the unknown

Chapter 2 A Progressing Diagnosis

Chapter 3 Wounds of Change

Chapter 4 Living in a Shell

Chapter 5 Things Changing for the Better

Chapter 6 Breakthrough

Chapter 7 Taking Risks

Chapter 8 Being a Parent with NF

Chapter 9 People Living with NF and Don’t Know It

Chapter 10 Losing My No. 1 Supporter

Acknowledgments

First and foremost, I want to thank God for allowing me to share my story. It took me a few years, but I did it. Special thanks also go to my daughter, Havana, for giving me her input on the editing process of this book. Love you, daughter atm. Also to my son, Jalen, you are unforgettable. Most importantly, I want to thank my late husband, Carl Butler, for showing me so much love and helping me be the woman I am today. If you were here to see this, you would have been so proud of me. Thank you family and friends that supported me through this journey.

And to those of you who have a dream that you are yet to achieve, you can do it because we are all winners in our own way.

Introduction

You never know how something that you think is so small can turn into chapters of the unknown. My parents thought they had a healthy daughter because I was born with ten fingers and ten toes, but they were dead wrong because on one particular day, when Mom was getting me dressed, she noticed small spots