Having a sing song, I knew that my biggest fan was waiting for me to change the lyrics.
‘Dancing in the dark, with Ben between by arms… bare foot on the grass, listening to Ben’s favourite song,’ I chimed, with a huge smile from my son Ben, now 20, glaring back at me.
Normally holding Ed Sheeran’s upbeat tunes back for when I felt like Ben really needed them the most, if I didn’t get a smile, I knew that there was something wrong.
And making everything into a song, rhyme or repetition was something that really helped to give Ben’s brain additional cues – a way for us to communicate and feel closer together.
‘For goodness sake, don’t stop singing!’ my husband Adrian, now 52, would say.
For music was a way to bring a sparkle to Ben’s eyes –
