Expecting our first child together, a girl, my wife Katherine, then 33, and I were over the moon.
Katherine’s four kids, Paige, then 13, Curtis, 12, Jayden, 10, and Daniel, eight, were keen to meet their baby sister too.
But at our 20-week scan, doctors found our baby girl’s spine hadn’t grown properly.
‘Everything will be okay,’ we reassured each other.
Two weeks later, it was confirmed our bub had caudal regression syndrome – a rare disorder that impairs the
