WellBeing

Thriving with a rare disorder

At first glance, nobody can tell all the struggles I’ve endured in an era that is all about image. While genetic disorders affect individuals in rare cases, intellectual disabilities, depression and anxiety occur most frequently in men and women. These conditions are only some of the health issues I regularly face.

In retrospect, I shouldn’t be alive given the battles I’ve fought and health challenges that have nearly ended my life. I’m one of those unlucky few who has dozens of medical diagnoses with numerous compounding symptoms. I live with a rare genetic syndrome known as 22Q11.2 deletion syndrome, also known as DiGeorge syndrome.

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