Woman's Day Magazine NZ

Olympic rowers reveal ‘THE RARE DISEASE THAT CHANGED OUR LIVES'

On a Wednesday morning in March 2021, Louise Storey, a champion rower who represented New Zealand at the London Olympics and several World Championships, pulled into a car park next to a Cambridge petrol station for a phone call that would change her family’s life.

Louise (née Trappitt) had dropped daughter Ava, then two, at day care and was preparing to head for a scan that afternoon to see how her second pregnancy was progressing. Her husband, fellow Olympic rower John Storey, was training at Lake Kara¯piro and was to join her later at the scan.

The call was from a paediatrician who matter-of-factly informed Louise that Ava

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