ACCEPTING CHRONIC ILLNESS requires courage. But for three exceptional women, courage can be found in their refusal to accept the status quo. Be it through movement, charity, or science, each is driven by a relentless determination to improve the prospects of those who share their condition, Ehlers-Danlos syndrome (EDS)—a group of 13 heritable connective tissue disorders.
WE GO THROUGH SUCH A PERSONAL STRUGGLE TO FIND INFORMATION, I JUST WANT TO SHARE IT
Jeannie Di Bon is a firm believer that movement heals. Following a 35-year quest for answers, a physical therapist was able to connect the dots of her symptoms by asking just a handful of questions. Finally, armed with an explanation, the diagnosis of hypermobile Ehlers-Danlos syndrome (hEDS) came as more of a relief than a surprise. Since qualifying as a pilates instructor in 2008, Di Bon had seen the
